Hi, my name is Racheal. My son had his first seizure last year in May. (19 years old) We took him to see a neuro and he had an eeg which was clear. He then had 5 more seizures until February this year when he was dignosed with Generalized Epilepsy. It has been an extremely challenging time for him, for me I am constantly on edge thinking when he will have another. He is on Epilim now 800mg daily, and I am praying that he does not have another seizure. I feel extremely anxious for him and worried that something bad will happen. My husband (not his dad) literally checked out of the situation and is not helpful at all. So, I am a foreigner in SA my son lives in my home country - my only support so far has been me. It is somthing i would like to get a handle on so that I can be a strong and positive motivation for my son and he can live a full unlimited life.
I've read so many positive stories on here and it has been a help, I am also thinking of maybe joing a support group or something before I loose myself in anxiety and worry.
Thank you for reading