Getting a Wheelchair

[Darkdravian]

Hi

I'm new to my diagnosis though the road has been rough. I am on a treatment plan but still a long way from working out if the medication is the right dose or even the right one for me. At the moment my seizures are so bad and unpredictable that I can barely do anything. I can't cook, clean, shower most days and when I can I need a chair. I have fallen and seriously hurt myself many times. Splitting my head open on the kitchen bench was the last straw. It is terrifying my family that I could brake a bone or never wake up from a seizure cause I have banged my head. It was just the other day I was doing washing that I hit the cement and must have banged my head on the sand pit cause the shape of the bruise. My husband and I do not own a car and are wanting to buy a Wheelchair for me to help me be more mobile. I haven't left the house in a long while. We are wondering what people think.

[EpilepsyAction1 Partner Epilepsy Action]

Hi, it sounds like a rough time for you all. I hope your epilepsy medicine will help soon epilepsy.org.uk/info/treatment

If you don’t hear from others in a similar situation, you may wish to try our other services.

forum.epilepsy.org.uk/

facebook.com/epilepsyaction

twitter.com/epilepsyaction

Here are some links to information I hope you and your family may find helpful:

Safety - epilepsy.org.uk/info/daily-...

First aid - epilepsy.org.uk/info/firstaid - this includes information for seizures in a wheelchair.

Just for kids (not sure how old your children are) - epilepsy.org.uk/info/parent...

If we can be of help please feel free to contact our helpline team directly, either by email [e-mail] or the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Thursday 8.30am until 8.00pm, Friday 8.30am until 4.30pm and Saturday 10.00am until 4.00pm.

Regards

Diane

Epilepsy Action Helpline Team

[Darkdravian in reply to EpilepsyAction1]

Thank you for the helpful information :). After research we have gone ahead and brought a Wheelchair and head protection. We are looking into making the house fall safe and changing our living arrangements so I have a safe low bed and fall mat and no obstacle or fall risks in my space. But to join a support group and hear from others will help a lot.

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Well people stare especially kids they always say out of the mouths of babes