I was diagnosed with epilepsy after having my son 3 years ago. I had eclampsia with my son and had a seizure during labour. I then had another seizure 7 weeks later and was put into Epilim. I was then changed from that due to side effects to Keppra. I was steady on that for a year and then in January this year I suffered from two tonic clonic seizures within 10 days of each other. From then, they decided to change my meds to lamotrigine. I'm currently on 75mg twice a day, increasing today to 100mg twice a day. I still don't feel "normal" though. I seen my epilepsy nurse a month ago and she believes I am having "mini" seizures still. My head jolts to the side a lot throughout the day and will have random spasms in parts of my body. I will also have the "dooming" feeling come on, and I kind of zone out, and within 5 minutes I feel slightly better. I have a great family and partner who supports me a lot, but no one understands how it is for me. It affects me at work, and it affects me being a mother!! Instead of taking my child to the park or for a walk, I lie on the couch because I feel so tired and do not feel right most of the time! I feel like I'm in a constant brain fog going through days without emotion! I'm so upset and frustrated, I just don't want to feel like this anymore! I want to live my life properly! I've struggled with anxiety since January and feel like it's back under control but constantly feeling like this is getting me so down 😔 I'm due to see my neurologist again but they are so "back logged" in patients, it will not be until into the new year although I should of been seen now! I get so irratated with epilepsy as its not an illness where you can just change your meds straight away, you have to wait weeks to increase and change over and wait to see how you feel all the time not knowing if it's going to work or end up making you seizure!! I hate this so much, I just want to feel normal again!!
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.