Hi I'm here trying To find some answers - Epilepsy Action

Epilepsy Action

2,251 members753 posts

Hi I'm here trying To find some answers


I'm sure I've been having a form of seizure every now and then. They present in what I would describe as absence. I'm froze and have no ability to move or speak. My eyes fixate. I can hear but unable to communicate at the time. I get ridgid limbs. I have seen a neurologist and they mentioned migraine. I don't believe it is.

Any advice please

6 Replies

I have just answered your first question for you. Now I see that you have asked another question. In this one you do not mention migraine which is an entirely different question. It would be advisable if you tell us exactly who referred you to a neurologist. The tests that the neurologist did or not give. The findings. What medications if any that you are on and exactly what they are for

I had a computer shut down I do apologise. On both neurologist has mentioned migraine. And restless leg syndrome. I have not or would not say I suffer with either.

Then if that is the case I would advise you to go back to your GP and explain your thoughts and concerns

Here's wishing you well

I am going tomorrow. Thanks

Do you drink alcohol? My son has a seisure everytime he quits drinking alcohol. If you drink, be sure your doctor knows that and see if it has anything to do with it. The doc has been able to find meds to help him quit drinking and not have a seisure. Good luck ..

Hi Tracy - I’ve had epilepsy for 43 years - I suffer absent seizures too - eeg doesn’t usually show my epilepsy up although in 2001 it did - I’ve had years in fact all my life being told it’s psychological but this week I went to see my neurologist (who I stopped seeing due to trust issues approx 7 year ago) - I’ve had a blood test done to see whether my epilepsy is genetic - it might be worth speaking to your consultant to see if this is a suitable test for you to have - I’ve found out being diagnosed seems to be an uphill struggle and it all depends on how much your consultant listens to you - but I really hope you get sorted soon x

You may also like...