I've just joined this site today to see if I can get help with a few things although I've been part of an epilepsy group in Edinburgh for quite a while.
I have had epilepsy since I was around 4 when I cracked my head open and since then have been on all the different types of medication out there but have had no luck. When I was 8 I moved to Bahrain with my parents where I was introduced to tegretol 200mg which was fine until moving back to the UK 2 years later where they divorced and my seizures increased in frequency so I was increased to tegretol 400mg but it didn't make any difference. In 1994 my father and I moved to Kuwait and things started to improve that well that I was finally allowed a drivers license and had a V8 Land Rover. Unfortunately I had to move back to the UK and it all happened again so I lost my license and had to stay on tegretol 400mg along with Epilim 250 and anti depressants.
I was in such a mess then found out my father bought a lodge in South Africa so he moved me back over there to stay with him and help him run it which was great ( we even had Richard Hammond from Top Gear stay which was a laugh ) . Things were improving once again until we had to come back this way where he passed away from kidney cancer in Ireland just after the North West 200 road race ( 2 days after my birthday and 3 before his ) . Since then I've been put on Kepra and other meds but the seizures aren't getting any better so they just increase the dosage where I end up sleeping most of the time or my depression gets worse and can get irritated really easily now .
do these side effects happen with anyone else at all ( depression and anger ) ? I still don't seem to have any improvement with the frequency of the seizures either.
Sorry, a depressing story but I'm curious if anyone has had anything similar and how people cope with epilepsy these days.