My head: Here is another photo 2 days... - Epilepsy Research...

Epilepsy Research Institute

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My head

jules1973 profile image
jules1973
β€’7 Replies

Here is another photo 2 days after surgery and nope it didnt hurt in the slightest

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jules1973
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Carley profile image
Carley

Wow you incredibly strong person you. I really do hope the surgery stops or improves your seizures x

jules1973 profile image
jules1973β€’ in reply toCarley

Improves them would be an understatement they have stopped completely not had one or a slight glimmer of them its jst like i never had them at all in december this year that will be 2yrs and wot a 2yrs its been the best yrs of my life

Carley profile image
Carleyβ€’ in reply tojules1973

That's fantastic news. I am so pleased for you. Isn't it amazing what they can do. I am very lucky & mine are controlled by medication, so much so that I have been told I have non active epilepsy but still need to stay on the medication.

jules1973 profile image
jules1973β€’ in reply toCarley

At least its under control am glad mine was drug resistant and i had tried alot and different combinations but to no avail i was either allergic to them or couldnt stand the side effects but i still take tegretol and zonisamide hope to get of them at the end of the year thats when i can finally say i am free of it all 😊x

Carley profile image
Carleyβ€’ in reply tojules1973

Yay πŸ‘πŸΌπŸ˜Š

Robotnics profile image
Robotnics

wow! that pic makes me feel a little nervous but your positivity helps me :) you are really lucky it has worked for you, thats really great news xx

jules1973 profile image
jules1973β€’ in reply toRobotnics

Its been brilliant never felt a thing except i leaked brain fluid so i ended up with a spinal tap omfg that was sore worse than surgery i ended up with low pressure headaches omg never felt pain like it couldnt even lift my head of the pillow once that got removed it went from good to brilliant i would encourage anybody that was thinkin about doing this it really is worth it

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