Hi there, I am a music student studyi... - Epilepsy Research...

Epilepsy Research Institute

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Hi there, I am a music student studying in Bath writing my dissertation on musicogenic epilepsy.

allymck profile image
11 Replies

I was wondering if any one would be able to speak to me about the topic as I would love to find out about some first hand experiences and information, whether you suffer from it or are knowledgeable in the subject.

Thanks!

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allymck profile image
allymck
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11 Replies
Carley profile image
Carley

I personally don't suffer from this type of epilepsy & haven't actually heard of therefore I just typed it into google (which I am sure you've already done) and there are people on the epilepsy.com website who suffer from it who you maybe able to contact. Good luck x

Pterodactyl profile image
Pterodactyl

Hi allymck, I can't help you with this one directly, but you have got my interest. Could you tell me more about musicogenic epilepsy? It could be possible that my son suffers with this and I had never correlated events. Maybe I might be able to help in a different way :)

allymck profile image
allymck in reply toPterodactyl

Hi yeah, Its basically epilepsy which is triggered by sounds. It could be anything from a specific sound, singer, instrument, pitch, frequency, or any type of music. What would you like to know and I'll do my best to help you!

JSJ58 profile image
JSJ58

I am an epileptic with a music degree. If I can be of any help please let me know.

Beeson profile image
Beeson

Hi there....

I have been suffering from most types of epilepsy for over three years now. Quite a few are triggered by music. Mostly I think is emotion related....??

Give us a shout if u want more info...x

allymck profile image
allymck in reply toBeeson

Yes I would love your help. How do you think it is emotion related - Could you tell me more about that? Maybe you could email me- alice-mckenna@hotmail.com

It would be most appreciated :)

Thanks

Beeson profile image
Beeson in reply toallymck

Hi ya,

Yeah I'll put an email together.

Daz

allymck profile image
allymck in reply toBeeson

Thank you! :)

rustypen31 profile image
rustypen31

I have never heard of this type of epilepsy, but suffer from the temporal lobe variety. I am, however, keen on music, and am a decent singer that can sing solo performances of folk or classical items. I also did a short OU course in writing about muisic. If I can help, contact me.

allymck profile image
allymck in reply torustypen31

Hi, I am really interested in finding out as much as I can - Would you mind if I sent you at some point a questionnaire/ interviewed you about your epilepsy? maybe you could email me? - alice-mckenna@hotmail.com

Anything you can help e with would be much appreciated!

Thanks!

Hi there, never heard of this type of epilepsy, but also did a Google search and found out more information regarding sounds etc. This to me would depend on one's emotions at the time, but I might be wrong. It sounds quite interesting and even though I've had epilepsy for 40 years, mine is more to do with heat, hormones and stress. Please let us know more information. Thank you. Les

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