freindship message

looking for new freinds with endometriosis. i feel the freinds i got now dont understand this devastating disease.

[LadyA]

Ever need to talk message me!! im free alot of the time xxd

[Hidden in reply to LadyA]

thankyou very much babe.i really have had arough time with this ilness i had my womb out very young aswell and i have no kids neither.but life goes on doesn't it.my endometriosis was very svere aswell.how would you describe yours.hunnie.xxxx

[LadyA in reply to Hidden]

Mines horrible, ive been suffereing with heavy periods sincce they started, but i didnt get pain till i was 16, and doctors always fobbed me off saying it was normal for my age and it would tone down, now at 22 its the worst ever, i cant work i can barely walk and i have to use a stick to help me get around! I've been taken into hospital countless times, and the most recent time i was in for a week, and was told i needed a lap asap! So they sent me home and said we will call u when we have your appointment, did they? no! i went back to see my gynea about it, and she had no idea what i was on about, and i wasnt even on the list for surgery, so she put me on the urgent list, and me and my dad rang the hospital every single day asking when is it going to be i need it soon im in so much pain, and finally tooday she said i have a time free on the 6th of jan, so i just jumped at the chance to take it!! But aswell as endo i have PCOS, nd the pain i get from everything is damn awful, in my pelvic, vagina, bum, lower back, down my legs, i spend most of my days crying and pain killers and TENS machine really dont do much!! Sex is awful, it hurts so bad, and i feel like im being ripped apart, and is really apinful on my cervix area, and sometimes i bleed from it, i also have prolapsed hemoriges on my bum which adds even more to the pain. im terrified to go to the toilet it hurts so bad!! And peeing aches so much i can feel my stomach hurt so bad when i go! sleeping is non existent! i dont think i even remember what it is! and now i have this horrible mettallic taste in my mouth! and of course no appetite either! my life is just on hold now, i cant do anything at all, going out is really hard work, just going to the shop is a massive effort for me!! Sorry about my massively long comment, just nice to get it out!! xx

[SuzieQ1]

Hi Kasy - I also am looking for friends with endo, not for the same reasons as you, but I hope that we could become friends xoxox

[Hidden in reply to SuzieQ1]

hello suzie sorry to hear you are not well.ive been reading your pro of course we can be freinds. what part of scotland are you from.i would love to visit scotland one day .ive always have wanted to visit there.ive had a hysterectomy at the age of 21 and they told me i got it in the bowel too and i am scared well and truely mate.

[SuzieQ1 in reply to Hidden]

Hello Kasy. I am from the North East of Scotland, in a little city called Elgin. Got major hurricanes here tonight, the roof on the garage came off earlier today. It's a bit of a nightmare to be honest.

Scotland is beautiful, especially up my way; the hills and the open expanse of land that just looks picture perfect. If you love isolation and easy living, Scotland, up this way, would definitely be for you.

I am so sorry to hear that you had to have a hysterectomy - had you managed to have kids before that? I have the endo - in my pelvis, through my tubes, in the pouch of Douglas, it has pulled my bowel so far that it is now attached to my abdomen area. Very, very painful. I also have it in my bowel obviously. I know how you feel with the fear etc. That is the reason that I wanted to make friends with women who have this disease, because no one can understand how isolating and lonely this disease can be. No one can understand it unless they feel it and even then sometimes it's impossible to relate because everyone's pain threshold is different etc. I just assumed that it would be more easy for a endo warrior to understand.

I am currently unsure of what I am going to do - when it comes to IVF - I had it all planned out with my partner but then he left and I don't know if I would be entitled to have a sperm donar or not. It's so confusing isn't it? We have so many hard decisions to make - the types of decisions that we shouldn't be making until we are at least in our 40's. It's a huge weight to carry and that is another thing that people, who don't have this, can't understand.

So where are you from? Do you manage to work? xoxox

[Hidden]

im from bristol hun i have had this endo very severe too.no i didnt manage to have kids.so for that reason to be honest the ilness has sort of turn me lesbian just because the simple fact is that the penis is just to painful for me .i also cannot work because of this.and i also got to go for a camera to see if i have this horrible disease in my bowel what symtoms do you get. they have also gave me picolax to clean me out once a week because i get so constapated.i get really bad shooting pains up through my bck passage,i also get stabbing pains going up my left and right side of my body it hurts it so painful.again thanks for talking this horrible disease out of us.xx