If I had to choose one word to decribe endo it would be 'frustration'. For me there is no rhyme or reason to my endo. There is no discernable cause and effect, no food or drink that relates to my symptoms, no pattern whatsoever. The only thing that makes the pain worse is activity. I drive myself crazy every time I have a bad episode analyzing every aspect of my day, trying to work out a link. Hoping I'll find one simple thing I've overlooked that will explain everything and the problem will be solved.
Endo is so topsy turvy. A patient riddled with it can have no symptoms whereas a patient (like me) can have the rather missnamed 'superficial' endo and be in agony. Despite thousands of women suffering in this country it's stll taboo. For example, a friend I haven't seen in a while will say something like "How's your *nods towards my abdomen* these days?' It's like endo is the voldemort of diseases! shhh don't say it!!!
What other disease do you have to explain intimate details of your sex life to (usually) a balding middle-aged man? Explaining exactly when and where it hurts is hugely embarrassing but nonetheless essential for diagnosis!
So, add to that the unknown cause of endo, the difficulty diagnosing it, the roulette of treatment, and completely unpredictable outcomes, endo gets my vote for the top 10 most frustrating diseases.
12g codeine, some ibuprofen, 40g ami, cerezette, loratadine