Any advice on how to cope with the consta... - Endometriosis UK
Any advice on how to cope with the constant pain when painkillers are useless?? I find that freeze spray helps but doesnt last long!
Hi Kirsty - what painkillers are you using?
I had to faff around for ages trying to find something that actually worked, and it finally came down to pethidine. GP is not thrilled, but it's the only thing that even touches the pain.
I take it you've tried the hot water bottle/heat pad approach?
C xxx
Ive been put on mefenamic acid seems b a huge improvement to naproxen with co-codamol. Hope u find domething. We are all different x
Hi I've been on loads of different medications over the years, at the moment im waiting to see if they will go ahead with another lap but in the mean time I'm now on oramorth 10mg even 4 hrs, I have another appointment nxt week where my Gp will calculate my doseage then will put me on MST which is long acting morphine, only problem it makes you constipated which I use movicol. Does make the pain more bearable but also takes time to get used you, at first tends to make you sleepy. I hate going down this route but nothing else came close to reliving my pain.I also take naproxen twice a day.
Heatwraps are good if the pain is in your back, you can get them from supermarkets.
Xx
Hi I an on mefenamic acid and cocodamol but I also use a electric heat pad it is a life saver be so lost without it x
I used tramadol with paracetomol and oramorph when bad. A hot water bottle is a must!
You could ask your gp to refer you to a pain management clinic, they will deal with sorting out pain meds and giving you ideas. I have an appointment on the 21st so I'll let you know any ideas I get given 
I agree with the above post, I wouldn't cope without my electric heat pad or hot water bottle!! xx
Hey, I'm a student pharmacist and also have endo. When you have the pain or you know you're gonna get it it is important to take the painkillers before it starts or asap and maintain them regularly. Paracetamol four times a day is important for even the most painful endo, and then you build on this with other drugs on top. Mefenamic acid helped me for a while alongside 60mg codeine but eventually I was taking paracetamol and tramadol and diclofenac suppositories. Soon this didn't work and I had to add on oramorph when required to top it up. Set up a timetable for yourself to keep on top and maintain levels in your system so that the relief is more effective. If you speak to your gp and keep stepping up the level till it suits you, that should help! Hope you get sorted soon x
Hi Kirsty, Endo can be extremely painful I've found a few things that help. I have prescribed co-codamol 30mg/500, mefanamic and transenamic acid. I also have a stock of 400 mg tablets for ibuprofen and when the pain gets bad in my back, ligaments in the top of my legs and in pelvic region I use Movelate Cream/Gel. You can either get it prescribed by your Gp or buy it in the chemist. It is really good. I hope this helps and things settle down soon. x
Hi Kirsty,
hope you're ok. I have been using Tramadol which is morephine based as nothing else seems to work for me - although after years of taking them i am now immune to them.
I brought a heated blanket and rely on that heavily, for me heat is always a good option. I have fibromyalgia too so i get constant pain in the legs and all over the body sometimes so really does help. not good if your other half doesnt like the heat but thankfully i dont have to share a bed with anyone ha! soon as im bad i rush home stick it on and get in bed! and REST!
hope you feel better and find something that works for you
x
Haven't tried freeze spray. However, I have found a cooling pad by 'Snugglesafe' to be my answer to that incredible pain as well as pain killers. I bought them originally when i was having hot flushes when i was having prostrap injections. I would have one on my back and one on my chest.i recommend 2 size small as they are more adaptable. I got them from a pet shop! (Amazon sell them). But boy I would not be without them. They are like a thin gel pack that absorb your body heat. You don't refrigerate them so they are fab to use whenever you need them. Great when you go away etc. The pack stays warm and you actually think its faulty. But wait until you feel you skin, it's freezing! I also find wearing support pants, (looks like a pair of cycle shorts) supportive and helps with that heavy, dragging feeling. I stuff the the cool pads down them and leave them to do their magic. They start off stiff but as they warm up they go soft and pliable.
Just such a simple thin, lightweight gel pack with no leads so you are free to walk around with them and not restricted by any electric cables. I even go out with them under my jeans and my support pants.
Really hope you find this as beneficial as I do.
