Would you have zoledex or not? Whats your experience of zoledex?

[Lizziecotterill]

Zoledex experiences?

Zoledex or not?

[NickiP1602]

I think Zoladex is the best injection on the market (should be at £800 each as I was once informed!)

Every person is different, but get past the first month, as it takes 4 weeks to start working, and then you can live again. I was put on it 3 years ago. I didn't have really any side effects other than a bit of dryness, and was on it for nearly 8mths. A year later I was put on decopeptyl which I just didn't get on with. As of September this year, I was put back on Zoladex and feel so much better. Some people say you can't be on it for any longer than 6 months but if you are looked after properly and checked regularly, you can stay. I wear a little HRT patch (Evorel 50) called an 'add back' which helps with the threat of problems that being on this injection long term causes. So far so good!

So I would say try it and see! Good luck xxx

[Chrissie66]

Absolutely, every single time.

It's not a walk in the park - I personally have horrible headaches on it and night sweats and my joints get a bit achey, but oh, the relief from the endo pain...

Also, it does its job - the last time I was on it was to reduce an ovarian cyst that had sprung up from nowhere practically overnight, it was 5-6 cm and neither my gynae or me wanted to go down the surgery route - after 6 months of Zoladex the cyst had not only reduced but completely disappeared.

It's not for everybody though, so if you can, opt for the one month injection instead of the three month. That way, if you really don't get on with it, you'll not have it in your system for so long.

Good luck

C xxx

[groberts90]

I've had it before and I would have it again - my only advice would be to be prepared. You are effectively, even with HRT, putting yourself through a temporary menopause. Every woman is different and the really weird thing is that every course you have is different! My second course was totally different (much better!) than my first, so nobody can tell you exactly how you'll feel. The first 3 months are the worst - you have all the side effects and still have the pain, but once you push through that the relief is like nothing else and you won't want to come off xxx

[nickym1d]

Have to agree with the other ladies, i was so healthy while on zoladex treatment, for the last year i had HRT also. Probably around 3 years if not slightly more on zoladex. My big concern was stopping and then my body starting to work again, periods returning etc

The worst thing was the actual injection i think it wasnt until 2nd year of the monthly injection when the nurse suggested emla cream to numb the area, which was a blessing

Good luck xx

[fatefulserendipity]

OMG I start this soon and not even sure i have endo, i am scared now !

[staceyliane]

I was on the 1 a month and hrt. The side affects are even worse than endo pain in my opion. I have been like a monster in my own body, mood swings, anxiety, depression, bipola, I stunk because of the amount of hot flushes I was getting! It was awful. I finished after 4 months and I've now been waiting for 9 weeks for a period to come and to start feeling normal again. Just remember to ask all the questions you need, because I didn't do any research and now I regret it. You are effectivly putting ur body through and early menopause there is a lot to consider. Good luck x

[JulesUK]

Please don't be scared, everyone is different. I have taken zoladex twice and don't regret either time. First time I was on for six months, I was concerned about all the side effects I'd read about but I was fine, I started taking sage tablets before the zoladex as i read they were good for flushes and night sweats and i had few side effects, I lost weight (bonus!) I did however feel more tired than usual and work were kind enough to let me change my hours slightly, I was so happy to be pain free that I was very reluctant to stop. The second time I was allowed to stay on for over two years with hrt, and again my pain reduced significantly. It' wasn't a long term solution for me, after 18 months of being off them my Endo was back but it did give me long periods of normality back. I'd suggest sticking to the monthly injections not three (I tried it didn't seem to last three months) and also for me I needed them no later than 4 weeks apart (as opposed to 31 ish days of a month) to keep the treatment topped up sufficiently. Try not to worry. I've just had a mirena coil, I've read a mix of both wonderful and awful experiences but I'm giving it a try to see if it works for me and it's the same with all treatments. Hope you get on ok, good luck, take care. x

[Lizziecotterill]

Hi ladies

Thank you all

For your help, advice & views.

Firstly ive been receently diagnosed (lap) in march 2012; after 7yrs of intense agony.

Over the years, ive had 3coils, 1 implant, several

Courses of several pills, injections, blood tests, cancer cells burnt from cervix, an cervical erosion & then a lap to

Diagnose. Finally Zoledex.

Zoledex

Is an awful drug in my opinion!

Ive had 6months of treatment, inc hrt first two

Months the drug must of got into my blood stream as i did had awful menopause symptoms; whlist still bleeding!

Each month i went, still taking northisterone like it was smarties to try & stem the bleed.

The injection itself like having a cannula put in with a stapler, left huge bruising.

I continued to bleed throughout the zoledex treatment & i saw the consultant at the end of 6months & which they resigned to the fact that the zoledex had not worked at all infact just made me more ill than it was worth.

Im now back on mini pill, still bleeding but although cant leave the first two days; it now lasts about a week of dribbling rather than waterfall. And menefemic acid & cocodomol. I couldnt go to work without them! And sex when may have time for it is Agony still!!

Ive trying supplements of evening primrose & iron but would greatly appreciate any diet advice?

Hugs to everyone. Hope you have a good day today.