still waiting : I have had symptoms of endo... - Endometriosis UK

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still waiting

Blacklab2021 profile image
3 Replies

I have had symptoms of endo probably since my periods first started, constantly back and forth to the GP for a long as I can remember had a referral to be told I have IBS and then a hospital admission to be told I had GERD, I had persistant thrush (tmi) so was then referred to gyno after a GP said they could see a lump on my cervix was told by gyno there was no lump this was when I was 19. I had my first smear just before I turned 25 and it was confirmed there was a lump and referred to gyno who confirmed it to be endo tissue along with my other symptoms I was then referred to a specialist centre but have been waiting over a year to be seen. My period feels as though they are getting worse every month. I want to self advocate but I’m honestly so tired. Especially bloating and it being so identical to a baby bump and my mind goes into over drive that I might never have the chance. Has anyone else been waiting this long? What can I do? I feel so done with it all right now.

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Blacklab2021
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Bubblepoppy profile image
Bubblepoppy

Ask your GP to expedite the appointment to try and get it quicker, I was waiting over a year for a couple of my appointments the waiting game is the worst, I hope you get it soon x

Cbol82 profile image
Cbol82

Ring them up every week asking when your appointment will be, ask to be added to the cancelled appointments list, complain to PALs - if none of that gets it moving then involve your local MP.

I hope you get an appointment soon 🤞

OatWhiteMocha profile image
OatWhiteMocha

Hello, I’m in the same position as you atm❤️ still waiting, after being referred for a laparoscopy over a year ago… I understand how hard some days can be and how hard it is to try and pretend like you’re coping. I feel done with it all most days too but knowing there are other women like you that are in just as much need as me kind of helps my patience a little bit… our turn will finally come (hopefully soon) and hopefully we will get all the answers we want and need! Keep strong and you can always message me if you ever want to talk ❤️

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