when it gets on top of you 😦

[Regenallotment]

Hope you don’t mind me sharing here, I’m awaiting endo diagnosis have had MRI recently waiting for results. I have small fibroids, 50% of consults think adeno, more recently 100% consults think endo. MRI should confirm. I have a catalogue of classic symptoms for all of the conditions.

Over the last few months/years I’ve refused Mirena multiple times ( I can ‘feel coils in me’), refused Zoladex as it’s contraindicated with my thyroid condition, I’ve tried transexamic acid for years, doesn’t do much for me but I’m taking it again.

But today I’m in such a state in so much pain and so tired, I’d accept anything. Stick it all in me, anything is better than this. I’ve taken max dose paracetamol for 4 days now. Appetite gone, not even chocolate is helping 🙄

Is this what happens? 😳 You get ground down to accepting hormonal options that cause other issues, because you have to wait so long not knowing.

Would you stop HRT in my position? I’m 51 with a regular cycle but multiple peri symptoms that I’ve had for at least 6-8 years. It helps with those but I’m concerned making gynae issues worse.

Feeling a bit hopeless, and hoping you can lighten my mood or give reassurance. I’m lucky I am well supported at home, work so far are being understanding, today was the first session I had to call in sick for these symptoms and I managed all day just couldn’t do the evening class ( been there 12 years). Local hospital gynae seem attentive too. So a lot to be thankful for. 🙏

[Mindfullness4791]

You sound very similar to me. I'm 50 and had a hysterectomy a year ago for Adenomyosis and multiple fibroids. My pain returned once I started hrt after the op, so they now believe I do have Endo. I'm.waiting to see a specialist. It can be a very lonely place 😢

I hope you feel more comfortable soon. I swear by my plug in heat paid. Intact it helps more with the pain than morphine!

[Regenallotment in reply to Mindfullness4791]

Thanks for replying, I’m so sorry that your hysterectomy didn’t solve things for you.

Interesting about the HRT. I maybe better off without it then

Thanks for the tip I’ll look at a heat pad x

[1Poppy1234]

I also use a heat pad I won't have hrt I had a hysterectomy and full oophectomy in Sept at 51 although my anxiety isn't great and I ache quite awful I'm not risking hrt I had/have endo and adeno picked up by internal ultrasound didn't pick anything up on MRI.

[Regenallotment in reply to 1Poppy1234]

MRI back and nothing picked up, small fibroids no adeno, no endo and small cyst on one ovary. Feels like I’m making it up.

Can’t tell you how grateful I am that you shared your MRI didn’t show it. Am booked in for hysteroscopy and laparoscopy next month. Hopefully that will find what’s causing all the pain.

[1Poppy1234 in reply to Regenallotment]

I also had an hystoscopy which showed my addeno and endometriosis but not the extent of it or the fibroid I had. I found it quite painful and was very uncomfy after they tried three times without anaesthetic which probably didn't help.

[Regenallotment in reply to 1Poppy1234]

Oh blimey poor you, based on online reviews at the hospital, I flatly refused to be awake for hysteroscopy so they’ll do it while I’m under. I had a biopsy that took weeks to recover from so they can knock me out for it 🫣

[1Poppy1234 in reply to Regenallotment]

I don't blame you I had a biopsy too. They are so reluctant to put you out aren't they. Think they are cruel as when you have what we have it's so painful.