Dienogest ouch!

[40plusandcranky]

I have been very lucky so far in that I don’t have horrific pain with my endo, however, recent specialist has prescribed dienogest because of my frozen pelvis and ridiculous bleeding, I have been on it for 5 weeks and this week my stomach is in agony, I feel heavy like I need to hold my stomach when I walk, can’t sleep because of the pain. Is this normal? Like I said I’ve not had pain like this before so I’m not living my best life at the moment

[ClaudiaGrace]

Hey, this is super interesting because I’ve had a few ‘flare ups’ lately with a really similar pain for weeks on end and I take deinogest, and I have to say I did consider if it could be caused by the medication rather than my endo. Tricker for me to work out though as I’ve been taking it for about 3 years and first 6 months to a year it improved my symptoms. If you can I’d go back and discuss with the specialist. I intend to do so in the new year myself.

[40plusandcranky in reply to ClaudiaGrace]

Thank you for your reply, I was starting to think I was going a bit mad, I literally had no symptoms ( that I was aware of apart from excessive bleeding and iron deficiency) so now I have pain I can’t get my head around what has changed, this new pill is the only thing. My next appointment is in 9 months so I might just drop them an email asking the question

[ClaudiaGrace in reply to 40plusandcranky]

From what I read a lot of people don’t react well to it so yeah I’d deffo check in sooner than that. One of the side effects is abdominal pain too as I looked it up for mine as it was different, like you say heavy like your bladder might fall out or something! Not ideal. Good luck with it.

[ChessJ]

I’m only day 8 into it as I was given it as an alternative to having an operation to remove my right fallopian tube. I feel like I’m back to square one prior having my lap. As I am having flare ups, getting headaches and so exhausted. I’ve and a couple of really weird brain fog moments like where I couldn’t work how to divide something by 2 or remember something my dad told me only a day ago. Some days I even feel sick and I don’t know if this where my body is rejecting it as I never got along with the mini pill. I know it’s early days and thinking should I keep it the course of three months and see what happens.

So I think it sounds like so many of us don’t get along will it. I would go back to your specialist and say it’s not working for you. Fingers crossed you get a solution.