Endometriosis surgery, bowel, stoma

[Music08]

Hi everyone,

I am 22. I don’t know anyone else going through what I’m going through. It’s affecting my mental health severely and I am panicked about my surgery. On top of this I recently lost a great friend of mine so this year has been crappy

I recently had my MRI results which showed endo on my bladder, uterus, ovaries and also most scarily my bowl.

I’m terrified of the possibility of a stoma.

I’ve been given 90% No and 10% Yes as my odds. I am so panicked and would love to hear people’s stories around this and just to be able to ask some questions.

I’m feeling desperate and isolated through this fear so any help and support would be greatly appreciated,

Thanks xx

[Pelvic_pain]

I was given the same odds although I didn't have the endo on my bladder. It turned out I only needed a bowel shave so was really pleased

[kakikoki]

Hi Music08I am sorry to hear that but you not alone,

I did my first laparoscopy on November 2018, the Dr couldn't remove all my endometriosis, a friend of mine told me about supplements from DXN , I started to take them, the first week I felt like my body is detoxing from everything, with a quit strict diet and of course I had to look for alternative food to eat, gluten free dairy free, no soya, no sugar, and no meat except fish, I stopped taking those supplements for a while because they were a bit expensive to buy but I saw myself getting better , September 2024 had my MRI scan and the result was amazing , the Dr told me the SCAN IS NORMAL ,

[MyStar86]

having a stoma is not the end of the world I have an ileostomy and I love it because it’s changed my life for the better so please don’t see having a stoma so negatively because they have such a positive impact on some people but personally I’m not superficial so I’m comfortable with my body I’d rather not have the pain and suffering and have my stoma any day!!!!