Diaphragm Endo Neck Pain and Dizziness- A... - Endometriosis UK

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Diaphragm Endo Neck Pain and Dizziness- Anyone Have Similar Pains?

Onoodle profile image
2 Replies

I have never been diagnosed with Endo but I always suspected I had it. I have gone to doctors and have been put on BC and the pain has temporarily gone away but always comes back.

The pain started 9 years ago with a pulling in my pelvis. It only happened during my period, then started happening during ovulation... now its consistent. Not only is the pain happening all the time but it has spread.

It was just on my left side and lower back and legs, then moved to my ribs. Now it is in my chest and goes up to my neck with occasional sharp pains in my mid back and shoulder tips usually on the right side.

My biggest issue now is neck, ear, and eye pain on my right side. I have constant dizziness. This just started in the past two weeks but is not letting up. I just got my period two days ago so I am praying it goes away but it hasn't yet.

Does this sound like Diaphragmic Endo? I am suffering badly.

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Onoodle profile image
Onoodle
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2 Replies
HolandstaceTED profile image
HolandstaceTED

hey there, I am an endo warrior, 5th surgery in 2 weeks for my colon to be removed because of endometriosis of my large intestine. I have realised over the years because endometriosis is a chronic illness it batters your entire body . You will feel pain from your head to your toes because your nervous & immune systems are fighting against the inflammation. I would start keeping a food diary I strongly recommend anti inflammatory diet it has seriously helped my fatigue , pain , digestion system and hormonal acne x

Bethleah profile image
Bethleah

I’d see the gp asap. Don’t let them fob you off. If the nhs can’t help it maybe worth seeing a chiropractor. I find this helps realign my pelvis. May help your neck too but they may tell you to get a ct scan of your neck first to rule out any major issues causing the dizziness. I get dizziness and have done for over 10 years. It is an unusual symptom of endo. But you need to have other causes ruled out. Are you on medication as this causes side effects? Looking at your diet may help but it made no difference to me.

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