NHS Endometriosis Centre recommendation?

[catlovesguineapigs]

Hey everyone, I'd really like some advice.

I'm under a pelvic pain team at the moment. I've only ever had telephone appointments, and spoken to a consultant once in the year since referral. When I was finally put on the list for an in person appointment, I was really hopeful - I prepared for hours, researching and trying to make the most of my chance to speak to a specialist.

I got to the hospital on the day and was told they'd cancelled it several weeks previously and not told me. (I'm also autistic, and this caused a huge meltdown for me afterwards as I had been waiting a year and felt completely forgotten about).

I contacted PALS, and it now turns out that the department just didn't send any letters about this appointment type for two months, due to an administrative error.

I have been so upset and frustrated by this, and I am so desperate. I really need to speak to a consultant. I know that under the Right to Choose scheme I can request to be referred to a different NHS Endometriosis Centre.

So my question is - where have people had good experiences? Both from an administrative and a medical point of view would be useful.

Thank you in advance 💗