Si Joint/back pain

[AMS_1]

Hi I have a history of back pain and endometriosis.

I recently turned 50 and leading up to my period my si joint pain has suddenly got worse and it all goes into spasms and I literally can't do a lot. It's not great the rest of the month either.

I had linked it to the menopause or back issues but starting to wonder if I could be endo? I am on hrt.

I was never treated but adhesions were found on my bowel and ovary in my 20s.

I just went on the pill.

Could there be a link? I have seen a spinal consultant and had some injections which didn't help. Had them before and had helped.

Not sure whether to see an gynaecologist or menopause expert and fed up! As affecting every aspect of my life. My last scan was a year ago and they found a couple of tiny fibriods.

Anyone else had similar issues?

Thanks

[Cambk]

Hello,

I’m sorry you are in so much pain - I don’t have an answer sorry but hoping to follow the convo and see what comes out.

My mam had a large fibroid removed, and they also did a hysterectomy at the same time (about 5 years ago) and they discovered endo. She suffers badly with Si pain and has done as long as I can remember.

I was diagnosed with endo in 2021 and also suffer with Si pain, though I do think after my lap and removal of some adhesions, the pain improved for a little while. So I personally think there’s a connection.

Hope you get some answers x

[AMS_1 in reply to Cambk]

Thank youfor your response which is really helpful. Sounds like there could be a connection hadn't really thought about it. Assumed back or Menopause. Hope you are doing OK.

[Janeflowers]

Hi , I am 54 and have stage 4 endo with ovarian cysts . I’m suffering with so much back and joint pain. Trying to work out if it’s menopause ( drops in estrogen) or adhesions causing problems as it really flares when do any exercise .Either way it’s an issue as gyne dosnt want to operate to remove cysts and HRT may cause problems with endo !!!I know this doesn’t help you but you are not alone with this problem and hope you do find an answer.

[AMS_1 in reply to Janeflowers]

Thank you sorry to hear what you are going through. Yes I am on Hrt and have to weigh up am I making my Endo worse or is it enough with the drop in estrogen. So confused and no idea who to speak to next. Going to the doctors next week and lay it all out.

[Cinnamonswirl]

Hi there,

I'm sorry you are experiencing so much pain. I can share some of my own experiences with suspected endo plus pelvic/back pain.

After going round various consultants for over a year ( I was fortunate to have have private medical insurance through work) I finally got a 'suspected deep infiltrating endometriosis' finding from a pelvic MRI. I had a lumbar steroid injection prior to this but that didn't make any difference to the pains. My symptoms had been various types of pelvic pain including back pain and pain after going to the loo. I am due to have a laparoscopy soon to have a look and excise.

Sometimes my back/pelvic pains feel like they must be originating from my spine as the pain is very nerve-like pain - it's currently burning in my perineum, buttock and back of my thigh. But it does seem to get triggered by my periods - it seems to flare up when a period is finishing. I have the bad period cramps type pain during the period.

Prior to the pelvic MRI I had two spine MRIs (one lumbar and one a bit lower) and they didn't show anything beyond 'normal wear and tear' for my age (40s).

My pain sounds like it's in a slightly different location to yours but your question resonated with me as I also wonder how much effect any endo adhesions are having vs hormonal levels vs 'normal wear and tear' of joints etc. I recently read that if you have pain of one type in that area it can sensitise the other parts of that area to feel pain more strongly, but on the other hand I have also read that if you have endo adhesions they can cause pulling on your joints and hence joint pain as well as other endo pains.

I wish you luck in finding some answers! x

[AMS_1 in reply to Cinnamonswirl]

Hi thank you for the response, it's so difficult to know where the pain is coming from or the impact of other conditions. Best of luck and hope you get some answers. Keep me posted if you can.I have 2 appointments coming up soon so hoping to get some answers.