Hi everyone... here to say hi and so glad to finally be part of a support group.

[Eeshpeesh1994]

Hi everyone.

I'm currently 29 and have been through severe period pain since I started my periods at 12 and ended up going on the pill and having severe pain, heavy bleeding and becoming anaemic. I still had pill breaks but the bleeding did get a bit lighter but the pain was still bad and progressively got worse.

I had tried to query this with doctors over the curse of several years but it amounted to nothing and 5 years ago I was told to take the pill continously which did help for the time I did this.

I then came off the pill to try for a family in early 2022... the stress that came with that and having normal periods again was terrifying. My periods were much worse, I had breast cysts pain for 2 weeks prior and severe pain going to the toilet etc. and I knew something was wrong for sure.

January 2023 investigations started but took so much time in which things forgot worse until I eventually went back on the pill in August. after no luck trying just to have a break. In September 2023 I was finally diagnosed with endo through our ivf clinic... but in October 2023 I ended up in hospital through a and e after having a pill break due to bleeding intermittently. Inflammation so high I was told initially it had to be pelvic inflammatory disease and sepsis or ectopic pregnancy and I was straight in for surgery.

This is where they found end stage endo, frozen pelvis, both tubes blocked and squashed, extension out into bladder ans bowel with all gaps covered in adhesions... here I was told I will never conceive naturally and IVF is our only hope. I was also diagnosed with adenomyosis in my womb.

We're starting IVF in Jan after almost 2 years of waiting and reviews and following this I know I need specialist surgery due to the frozen pelvis.

I know this is a but of a waffle but I've never shared my story and feel like people here will be able to relate with some part of it. Just taking things day by day for now and looking forward to the day I can get back in the gym for some exercise

[Lavenderpetal]

Hi!

I'm so sorry you have gone through all of that! It's awful the pain we have to go through to get seen and believed. Thank you for sharing your story, you are right many will relate and this is such a safe place to share and voice how we feel. I'm also new to this group and I've found it to be a wonderful place where people finally understand and can share tips and tricks. The day you can exercise in the gym will come keep holding onto that! I hope your ivf journey goes smoothly sending love🤍

[Eeshpeesh1994 in reply to Lavenderpetal]

Thank you so much! It's just nice to actually write it all down knowing there's no cause or cure but that others can actually relate rather than pretending to tie your shoes when you can't walk or needing to know where every toilet is before you go out :). Thank you for your response!

[Strawberry88]

Hi,

Just like to know, you’re not alone. I am on the pills now and I understand your stress and fear of coming off them. Even though I don’t want to be on them, they help me so much with my pain. Just know you’re not alone in it. Your story here, helped me so much in understanding am not the only one too - Thankyou.

[Cocoacupid]

hun I was like you but started periods at 10 was on and off pill but the pain was excruciating 😣 when on the pill as if I wasn’t taking it. In my twenty’s had ovarian cysts and they said I was fine. Am now 37 nearly 38 had to have the coil as I was bleeding so heavily in and out of the out of hour drs as I would t be able to walk. Like you was then diagnosed in April this year. Like you severe deep infiltrated endo with bowel involvement and other organs and a frozen pelvis too. Nauseous , vomiting . And lots of bowel issues and bladder issues. Just want to reassure you that now you know what’s up the ball will get rolling for you. I don’t know though if your ll conceive if they haven’t sorted out the frozen pelvis . I think once they have taken it away and unstuck your organs it may help more with the ivf but I would find out though . Xxx