Recurring UTI’s - Linked to Endo?

[EndoClaire]

Hi everyone 😊

A but of background about me: I’m in my mid twenties and suffer from endometriosis and adenomyosis. Looking back my symptoms started all the way back when I had my first period at age 11 - I went on the implant at 16 and that was life-changing for about 4 yrs. Then during the pandemic it all changed; I bled for 2 years straight, experienced pain I didn’t even know existed - life was a misery. About a month ago I underwent laparoscopy, and I am so excited to see how my life changes. But here is my question; in line with my endometriosis getting worse, I kept getting recurring UTI’s (I’m talking every other week!) - is this something anyone else with endo has suffered from? And if so, did anything help? Thank you so much💗

[Alice96]

Hey, I am so sorry that you’re going through this. I had similar symptoms where I felt like I had UTI constantly it was so uncomfortable and was always worse around my period. It would be stinging and burning and a heavy pulling sensation. I would go to the GP each time and most of the time they would say they can’t see any infection but would give me antibiotics anyway - they never worked. I went back on the contraceptive mini pill after a while which stopped my periods and this symptom seems to have eased. However I still get a similar feeling when my period would be due for a few days but nowhere near as uncomfortable. I really hope you find a solution as the pill just seems to be palmed off on us, I’m too scared to come off of it now as my symptoms will be even more intense 😢

[EndoClaire in reply to Alice96]

Hey, thank you so much for your reply❤️ That’s really interesting to note, thank you. They now want to put me on a mini antibiotic daily.. I don’t know how I feel about it! They also them start running ideas through my head like “could it be your kidneys?” “Have you had a scan before?” - and then it feels like another issue I have to look into🤣 But thank you so much for your advice, I hope the pill keeps working for you and that your symptoms remain manageable xx

[Alice96 in reply to EndoClaire]

Hey, yes it’s so worrying and your mind can spiral! I did have an examination on my pelvic floor and they said working on that may help. They also prescribed me antibiotics to take after intercourse on one occasion and another time a nightly antibiotic called trimethoprim but didn’t find it work for me but that’s not to say it won’t work for you! Wishing you the best of luck and I hope you get to the bottom of it❤️

[Hidden]

Hi I don t know much about this but my mum recently told me to do kegel exercises and it seems to get better keep in mind to not rush when peeing because sometimes there is a drop after 20 seconds . I already told my doctor that I sometimes have to strain/push for the last part of pee to come and they just brushed it off that I am stressed. Having endo is stresfull because it seems there is no treatment for the pain flares bleeding except covering with pain medication which sometimes doesn t even work but then give me an antistress pill and see if my pain is still there.

[EndoClaire in reply to Hidden]

Hi, thank you so much for replying❤️ I will definitely look into those exercises! I know exactly what you mean about the last bit of pee haha, and it always feels like there’s more to come! I hope you’re doing okay and that your pain is manageable 🙏🏼 xx