so I think I'm a rare case

[lisatf2004]

I went for surgery in June with my specialist and bowel surgeon to remove endo from various places including the bowel .. im stage 4 endo deep infiltrating..rectovaginal , etc etc cysts etc..but...on putting me sleep they decided to to do a.sigmoidoscopy aswell to double check symptoms as this was the first time the bowel surgeon has been brought in to my surgeries ... they found a 3cm inside my rectum and decided not to operate until they knew what this mass was, checked for cancer etc thankfully not cancerous turns out its an endometrioma !!!!!!! my surgeons have never seen nor dealt with one where it is positioned in my rectum and disnt think it would turn out to be endometriosis..so going forward my surgery is Tuesday 29th November..im very nervous as this is a new finding for my surgeons also but can't wait for surgery

[NoEndoInSight]

Hello,

This sounds really similar to my current experience - I’m being treated for Perineal Endometriosis with endometriomas in that area. It’s been a nightmare few years trying to get everything diagnosed. Do you mind me asking how your surgeons plan to treat the endometrioma?

I’ve just started a 3rd chemical menopause to try calm things down before surgery in a few months time, but as yet no one seems to have a firm plan of how things will be approached.

x X x

[lisatf2004 in reply to NoEndoInSight]

hey , well they gave me a few options. said they could remove my rectum an I would have a temporary stoma bag , or when they are doing my surgery they are going to try and drain it from the inside im worried but it needs done

[Bluehaze123]

Can you please tell in detail about your symptoms?

[missymo]

good luck💖 I’ve had lots of surgeries, ended up with no bowel, bladder or vagina just before lockdown! Now MRI tomorrow because I may have colitis in the tiny bit of bowel that was left in!!! No peace in the last nearly 3 years😰

[Marcia71]

I hope the surgery goes well. And I trust it is at a bsge endo centre as they will have the right team to help you.