looking for support ❤️: Hi this is my 1st... - Endometriosis UK

Endometriosis UK

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looking for support ❤️

Michelle_2022 profile image
7 Replies

Hi this is my 1st post, iv been experiencing stomach pains etc for over 2 years now, currently waiting for laparoscopy as I know 100% it’s endo! Really struggling at the mo ( week before period) 🥹 I feel like every month the pain and symptoms are getting worse & more unmanageable…

what’s really worrying me is weakness in my leg does anyone else get this? I get joint pain in my hip and knees, but then sometimes I get this weakness in the opposite leg it’s so scary & upsetting.

I really need like minded people to speak too for support, feel like friends just don’t get it 🥹🫶 thankyou 🤍

7 Replies
Emmaja_ne profile image

Hi I’m also waiting for investigations. it’s so horrible just waiting around. Have you had the initial appointment with the gynaecologist yet? (I’m still waiting on this! 😭) I started a different pill about 3 months ago after not being on anything for a long time. Its really helped ease my symptoms. When I had a period before going on the pill I would get the leg weakness too.

My main symptoms are unbelievably painful periods and ovulation. Pain when going to the toilet (mainly when opening bowels but also when passing urine) rectal pain, bloating and pelvic pain throughout the month, joint pain.

Do you have an appointment for your op yet?

Michelle_2022 profile image
Michelle_2022 in reply to Emmaja_ne

hi Emma, no my gyno appt is in dec..so same boat as you! It’s nice to hear it’s not just me with the leg weakness it’s such a scary feeling 😭 glad yours has stopped though with the pill.

My pains are awful too when ovulating it’s just sucks!! Yep major bloating, left flank back pain & knee pains. How long have you been having all your symptoms for? X

Emmaja_ne profile image
Emmaja_ne in reply to Michelle_2022

mine is left sided too. Hope you get some answers in December! How long have you been waiting?

I’ve always had awful periods since a teenager but then went on the pill which masked things. My husband and I wanted to try for a baby so I came off the pill and then my symptoms were awful. Finally got pregnant over a year trying. Once I had the baby it’s then that my symptoms are just unmanageable. The pain has made me sick at times! can’t believe we have to wait so long to just be seen by someone. I had a pelvic and transvaginal scan 2 weeks ago which were normal.

This forum is really helpful to make you feel less alone/ like your not going mad!

Michelle_2022 profile image
Michelle_2022 in reply to Emmaja_ne

I hope so too 🙏🏼 Iv been waiting for my gyno appointment since April so it will be 9 months.

Congratulations on your baby. I can’t even imagine how hard it must be looking after a baby feeling like we do 🥹

I agree, it’s nice to speak to someone who actually knows what your going through ❤️ Where are you from?

Ruby1221 profile image

hiya! I’m awaiting a hysteroscopy and MRI have had pain on and off for years but this last year I also feel the pain In my hip!

Michelle_2022 profile image
Michelle_2022 in reply to Ruby1221

the hip pains horrible I’m 40 feeling like I’m 90 !

Dee_EndoUK profile image

Hi Michelle

First of all, a really warm welcome to the forum! It's lovely to see that several members of our community have reached out to you already with support.

If you haven't already checked out our website, we have loads of information and resources there to help you. For information on what to expect before, during and after your laparoscopy, you can visit endometriosis-uk.org/your-l... - if you scroll down on this page there is also a separate link to 'Laparoscopic Surgery for Endometriosis'.

Along with our forum, we also run face-to-face support groups all over the country, where you can discuss endometriosis and the issues you are facing with other sufferers. To see if there's one in your area, visit endometriosis-uk.org/find-a...

Wishing you all the best - we're all here for you x

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