new to the forum- Ultrasound scan

[Lotus95x]

Hello,

I am new here 😁 I am having an ultrasound scan tomorrow and I am hoping something will be picked up on this. I have suffered from awful periods since my periods started when I was 13. I would faint, be sick and have horrendous pains that would stop me from getting out of bed some days. I was put on the pill by my GP around 1 year after starting my period and have been on this ever since. Whilst my periods are regulated they are still extremely painful.

At the beginning of July this year I started to experience really bad pains and whist the GP initially thought it was a UTI the tests were clear. This isn’t the first time I have had pains in this region and it always seems to happen around the time of my period. A UTI is always mentioned but ruled out very early on.

I’ve had my concerns dismissed previously and been told that some women are just unlucky to suffer with bad periods. I’m really hoping that even if the ultrasound shows nothing they will continue to investigate.

I was wondering if anyone else has had a similar experience?

[Coco1860]

Hi!

I had a few ultrasounds for very similar symptoms that were suspected as endometriosis in 2019, 2020 and 2021. They gave me an internal transvaginal ultrasound twice and an external one and found absolutely no evidence of cysts or anything like that, and generally the ultrasounds were viewed as not problematic. But when speaking to a specialist afterwards she told me that you can’t really see a lot of evidence of endometriosis on an ultrasound, so I was told that due to my symptoms she was clinically diagnosing me with endometriosis.

I was put on tranexamic and mefenamic acid to control the pain and severe bleeding as I chose not to go on the pill, but I still wanted to get to the bottom of it as I’ve been told that the only way to know you definitely have endometriosis is to have a diagnostic laparoscopy, and I still had other symptoms the medication was not helping.

A year after my clinical diagnosis I went back to my gynae and asked to be put on the waiting list for a lap. I had to push a little as they wanted to try the pill first but I was firm about what I felt I needed.

I was due to have my lap in three weeks after a 9 month wait but I’ve caught covid so it’s another 7 weeks on top and I’m still waiting for answers.

Long story short, I’ve been there!

My advice is that they will investigate and they will listen to you as long as you keep advocating for yourself. You may find like I did that nothing worrying is found on the ultrasound(s), but don’t let this dishearten you and stop you from looking for answers, as your pain is valid and your experience is very real!

I hope any of this was helpful to you, and good luck! x

[LDee2022]

Hey! I have been diagnosed with endometriosis just over a month ago and like you really struggled with the pain. I was put on the mini pill to regulate my periods but found that I just ended up being on a constant period or spotting that lasted a few months For years i have been getting frequent UTIs and never got to the bottom of what was actually causing them. I'm hoping that now I've had my endo tissue removed that I will hopefully stop getting them so frequently.

If your ultrasound doesn't show anything then make sure you keep on at your doctors to get the diagnosis you need!

Good luck x

[Lotus95x]

Thank you for your replies.I’m keeping everything crossed for tomorrow x