please can I get some advice ?

[LottieXD]

hi everyone,

I have PCOS but I suffer from serve pain, it’s worst when I am on my period (which happens roughly every 53-56 days). when I get my period I spend most of time in the bathroom with vomiting, diarrhoea, fever and if I walk anywhere find i faint a lot. My partner has previously called the ambulance for me and when I went to hospital I was bleeding so heavy and also bleeding out my bum too. The gynaecologist at the hospital wouldn’t see me and advised I needed to take pain relief and then get a referral. So I went to my GP and finally got a referral months later.

When I went to the gynaecologist…I felt like I was over-reacting like I was faking it, he told my partner if we had a baby then the pain would be gone because I wouldn’t have a period. I was in tears telling him how much pain I was in and that I have tinges most days he went on to tell me it’s highly unlikely that it’s endometriosis and more likely IBS. I wanted to curl up and die there and then I was so upset that he didn’t even think it was to do with my womb. He sent me for an internal ultrasound which he found a small polyp on my cervix and my right ovary covered in cysts. Then told me no endometrial cells advised would need laparoscopic surgery to see. So I’m on the waiting list and I’ve been told won’t happen for over a year.

So still waiting - we are considering private appointments is this a good idea?

My mental health is shot, I dread my periods (like I’m petrified to have one) and I don’t want to have sex cause it hurts after and all I keep playing over in my head it’s just IBS that’s what he said.

Does this sound like endometriosis symptoms or am I just clutching to straws here ?

Is there any tips for pain relief too I currently take all the pills I can!

Thank you

[Heloo85]

First of all, the reason for your long cycles is due to your pcos! That is caused by high levels of testosterone shutting down your ovaries causing anovulation! You are not ovulating! The pain is likely due to that hormone imbalance!.. Could you have Endo? Of course! Sure I know someone who has PCOS and Endo!.. Is it actually Endo? Who knows! I’m at stage 5 worse than worse Endo! I have a lot of pain but not period pain!

So all in all you need to address that disease first! Get your PCOS under control! It could all be from that! Xx