Hi All, have been reading through all the messages on here. This is my first post as I’m new to this.
So approximately 4 years ago I was diagnosed with an ovarian cyst approx 6cm, hospital insisted I do the watch and wait although I had pain regularly and heavy periods. Within 2 years I was the diagnoses with a “chocolate cyst” on my other ovary. Again watch and wait was recommended.
I was put on the contraceptive pill at 13years old due to endometriosis although never had a formal diagnosis and have never had any treatment for it.
The last scan I had was over 2 years ago due to covid I am still awaiting to be seen to have a scan to check the sizing.
Now having menstrual cycle issues along with other symptoms so have been put on the cancer pathway and have tests next week, I was just looking for information regarding the cysts really and how that’s effected other people. I’m 32 have a partner but no children but now this is effecting my life regular and I feel like I’m always fobbed off for it to be normal.
mid appreciate any replies and I am very aware all cases are individual. ♥️
Written by
CaseyA
To view profiles and participate in discussions please or .
It wasn’t thank god , but deep down I knew it was endometriosis and I told the doctors this but I think when you have large cyst they often think it cancer .
I lost my ovary , had surgery sep last year , now on the waiting list for more surgery as it wasn’t dealt with .
It’s wrong of them to just say we will wait and see what happens with your cysts , they have obviously grown bigger .
I had a ca125 blood test raised .
I had my surgery at Christie’s not a nice experience to go through .
Endo often has raised ca125 levels which cancer does too so it’s always worrying but hopefully it’s endo. Chocolate cysts - endometriomas - are often signs of deep endo and that can be hard to see at lap but easier to see on mri or a transvaginal ultrasound but they need to be done by an expert in detecting endo. Most bsge centres have someone nowadays. If you can afford it you could pay for a private scan with such an expert it may give you some peace of mind and a way forward.
I’m not too worried about the whole cancer pathway as I know it’s protocol, but I just feel like I was told I have these cysts and then left. But my symptoms seem to be getting worse as time goes by and I have not had a scan for almost 3 years now, never had anything done about the endometriosis either so I just wanted to see what my options were. Thank you for your reply. I think private might be something I’d have to look into now x
I think a private scan and maybe an appointment can really help. I did that at different times and the consultants helped navigate nhs referral to them so that I could just pass info to gp to refer me.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.