Having a flare up and get this intermittently during flare ups where I have to pee every 5 minutes. I’m trying to stay hydrated but it’s hard if it just comes out like 10 minutes later.
It hurts so much to hold in pee causes sharp pain and nausea anyone experience this.
Drs are no help made me cry this morning fed up with them.
Hi I get this problem still but they havent got to bottom of it yet mine is every second I go wee go to sit down then need to go again and again and again constantly. I'm same if hold in I'm in so much pain and agony I've got loads health problems that they still havent got to I'm only 26 years old and they keep saying they cant do nothing until I have my scan. But when I go wee not all is coming out but my bladder stills constantly full
Sorry to hear this, as I am the same. What I would say though is to get checked that it isn’t a UTI. I always blamed endo and at a routine appointment I did a urine sample and it was a UTI. Mine is mostly endo but it’s good to rule out a UTI in case you need antibiotics. Take care x
I’m sorry to hear this. Push and push for an MRI - I had the same (though I also had the constant urge to go even when I had nothing to pass, and incredible pain every time I did go) and turned out I have significant endometriosis on my bladder. Hopefully this isn’t the case, but keep pushing for an answer!!
So sorry to hear you are suffering with this I had it bad before my endo surgery. I couldn’t go anywhere without knowing where the nearest toilet was. The Drs should not be treating you like this. Keep pushing for a scan/endo referral. If it gets that painful it might be worth calling 111 and trying to get an a&e referral. They can usually scan you and might get you some sort of idea whats happening. You shouldn’t have to wait in pain.
So sick and tired of doctors too.Had a really bad experience like yourself.My last appointment made me cry too.Being totally ignored.Still dont know why this is happening to me.Maybe you should consider going to AE at hospital.At least there you would be listened to and tests done.I am at my wits end with it all.I get no sleep.I go to the toilet then 5 or 15mins later have to go again, but my tummy hurts so bad like i have been holding it for hours.And i feel.sick.Sometimes i come.back from the toilet lay down and have to get up again immediately.This has been happening to me since 2020.Dont let that happen to you.Doctors hold the key to referring you to hospital.Maybe you should take it out of their hands annd.go straight to hospital.They will run all the test there and then...and no more dealing with horrid, arrogant,unsympathetic gps.I hate to hear you going through this.Seriously consider taking yourself to hospital.You know your own body xxx sending you my thoughts and best wishes.xx
Lap tomorrow! Can’t stop panicking
does anyone get too frequent urination during your flare ups or constantly 
Can’t live like this 
Endo and the Bladder
Do I have IC? ( interstitial cystitis ) or Endo on my bladder.
