Disappointing scan results

[RosieLou94]

I had an ultrasound on Monday and met with my consultant today to get the results. He told me my ultrasounds were clear and I had no cysts on my ovaries and he couldn’t see any signs on endometriosis and that my uterus looked healthy. He still wants to push ahead with the surgery as he said that ultrasounds aren’t a conclusive way of diagnosing endo. I left the scan feeling really upset and angry because I really wanted there to be something on that scan to justify my pain. I know it sounds silly but I feel like the scan not showing anything means maybe I’m just not good at handling pain, or I’m overreacting.

I think as well, I’m finding the whole process mentally draining. I desperately want answers and I really don’t know why the lack of answers has upset me so much.

[Jane884]

Hi, don't feel too discouraged. I had various ultrasounds and everything looked normal, even though I'm in daily pain. I felt the same as you. I even cried at the sonographer at one of my scans for telling me everything looks healthy. I had my lap and found stage 2 endo and possible adeno. My uterus is enlarged and attached to my bladder, and it's pulling my bladder up. None of this could be seen on an ultrasound and the gynae that did my lap didn't even think I had endo and neither did the private gynae I saw before that.

The process is very draining, trying to get diagnosed with endo can feel like your trying to climb a mountain whilst someone's stabbing you in the vagina, kicking you in the pelvis and squeezing your kidneys. And the wait for answers in between is demoralising, but please don't question yourself. You're not overreacting or bad at handling pain. In case you don't know, even if you did only have a small amount of endo, that can be more painful than a case that's stage 4, the severity isn't directly correlated with pain.

It's great that you have a doctor that seems willing to carry out a thorough investigation, that's a huge part of the battle. Hopefully a laparoscopy will give you the answers you need. Hang on in there!! x

[RosieLou94 in reply to Jane884]

Thank you so much! Your response was really encouraging. I’ve got surgery in 2 weeks so hopefully will get some answers xx

[RJB212121]

Hya , sorry to hear your suffering, I’m in the same position, I had scans but nothing showed up on them , the gynaecologist then booked me in for an MRI to which I’m waiting on results . I’m hoping something shows up otherwise it’s a long wait for a laparoscopy diagnosis 😩. It does make you second guess your self doesn’t it , but I just know there’s something not right you know your own body we shouldn’t be in pain and discomfort all the time . How long have they said it will take before you get a laparoscopy? And have you been offered an MRI ? X

[RosieLou94 in reply to RJB212121]

No MRI was offered but I’ve got my surgery in 2 weeks

[RJB212121 in reply to RosieLou94]

Oh well that’s something . You will get answers soon . Fingers crossed 🤞! If you don’t mind me asking how is your surgery so soon after the scans not showing anything ? As that’s really good in waiting times for surgery iv been told its 2 - 3 years and sounds like I’m at the same stage as you with scans etc but still waiting on my MRI results. Good luck with the surgery anyway hope everything goes well for you xx

[simplerthings]

I feel exactly the same. I hope you find answers soon.