Thoughts on hormonal coil?

[Shels97]

Hello again everyone! Some TMI HERE -

I'm physically and mentally exhausted currently with my pain and endometriosis symptoms. I had a coil put in 5 weeks ago after a failed lap to remove some of the endometriosis tissue (if mild - turns out my case was too severe to be treated and also there were other complications so another lap attempt is not possible for me) and since having it I have not stopped bleeding, well I've had maybe 3/4 days in the last 5 weeks where I haven't bled but even on those days I've passed massive blood clots! I suffer from PCOS also so heavy periods with large clots is not new to me but passing clots without any period blood and the amount of clots when I am bleeding has gotten me to the point of concern! My doctor has put this down to the coil basically said 'it is what it is' and that I should preserve and that it could take months to work or I could wait years and it never work but it might be worth the pain and bleeding one day (I also got a lecture about why patients are called patients not customers and that it's because we have to be patient and wait for treatment to work, no idea how I stayed calm after hearing this while practically crying down the phone to my doctor begging for some relief) after much discussion he told me to go and do some research on the coil to find out if I think it's worth keeping it or having it taken out so that's why I'm here! I don't want medical facts and things at the moment (that research is done!) I'd like opinions, first hand experiences etc. Did it work for you? How long did it take? What were your side affect?

I truly appreciate any response to any of these and don't worry about scaring me off! The more honest the better, the good, the bad and the ugly all welcome!!

Thank you x

[Kla82]

Hi sorry to hear you're going through all this , it's so frustrating, I had the coil for an agonizing 3 months , the day the nurse removed it was heaven ! I wouldn't want that back if someone paid me ! Unfortunately I'm running out of options so after trying this pill I think a hysterectomy is my next step , I really hope you find something that works , I definitely didn't get on with the coil though , my body rejected it first attempt, my uterus went into spasm! 2nd time they inserted it under general anesthetic but from the pain i experienced with it in I felt that my body was screaming at me to remove it , I think the clips from my sterilisation is irritating me too 🤦🏼‍♀️ best of luck with everything .

[Shels97 in reply to Kla82]

Thank you for your reply, I'm sorry you had such a tough time with it. Mine was put in while I was out during my Lap attempt but the second I woke up my body just didn't feel right with it at all. I've had copper coils and they've caused me issues in the past but never as bad as the mirena!

[Krn210]

Hi there! I have only had my coil since mid May now. I bled off and on for the first couple of months. I was bleeding more than I wasn’t for sure. Also horrid mood swings and anxiety attacks that would hit out of nowhere. My cycle has been coming regularly and it feels like period day 1 for me all throughout it…I mean that as in the fatigue, cramping, bloating, weepiness, hunger, etc.Prior to the coil day one was the worst for me. Day 2 and 3 maybe a bit better before I was completely knocked on my butt…why my body does it this way, I have no clue. Anyway I haven’t had the end of the cycle knock down and was doing well mid-cycle. However last month and now this month I am experiencing my mid-cycle pain again. Last month’s cycle was shorter and easier on me. It’s been so back and forth that I don’t know if it is settling or what lol. I will say that the anxiety attacks have gotten better…not happy with this mid cycle pain again. I wanted to take the kids out today for a treat but don’t see that happening now. I hope things settle for you.

[Afrohair]

I've had the coil since around may after giving birth in January at first it was horrid bleeding every minute symptoms of endometriosis horrid but this month it seems to have finally calmed I put myself in this perspective because I've felt near enough the same as how you feel now .is the 5-6 months worth the 4 years pain free?1 my answer to that was yes and that was what made me keep it in .it's been terrible over the summer thinking I can't wear swimming wear when everyone is having fun but fingers crossed this is last of it and I hopefully won't have anything knowing my body I may have some spotting later or before it runs out but right now I'm pain free and loving it don't know how long it lasts but pray it will last 4 years I've even gone back to eating what I like and endo diet has gone out the window so stopping the bleeding is what needs to be done to keep endo at bay .I did the research beforehand the period repair manual and some other research all pointed to the coil as the best option fingers crossed for you if it was me I would wait at least 5 month I know it sounds long but I think some people settle quicker than others mine definitely took it's time x