Prostap side effects. : Morning ladies, I... - Endometriosis UK

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Prostap side effects.

JH21 profile image
JH21
11 Replies

Morning ladies,

I need your help.

I had my first prostap injection on Thursday, 1 of 6, 1 a month.

I have read a lot about the injection and side effects etc. Listened to people’s experiences.

But I swear after only 2 days I have bad spells of palpitations and already feel like I’m hot flushing.

Is this normal? I swear I’m not imagining it, but everyone I’ve spoken with says it takes at least a week for the side effects to kick in.

Literally any advice would be appreciated at this stage, talking to the Queen herself would probably be easier then getting to talk to my GP right now.

Xxx

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JH21
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11 Replies

Hi J,I'm on decapeptyl, which is similar to prostap.

I'm taking tibolone as HRT add-back to avoid hot flushes & other menopause affects. You might like to ask your GP / consultant about HRT-add back to reduce symptoms too.

I'm I.5 weeks in, and it's going ok now (first days were awful with burning abdomen sensation, but feeling better now).

JH21 profile image
JH21 in reply to

My specialist only gave me prostap but then my go gave me HRT and told me take them if I need them.

I’m trying to not take them unless I need them which sounds silly I know.

I just didn’t know if it was normal to feel effects this soon as everyone I have spoken with said it takes around a week min for side effects to kick in.

Xx

evilpunkypie profile image
evilpunkypie in reply to JH21

I started on prostap on the 29th with hrt tiboline on the day I had the injection I felt really tired and had a migraine couple of hours after...next day fine just flutters in the stomach...but a couple of days in and stomach pains like a period on and off and a couple of hot weird face flushes and this is with the hrt aswell but upto now not really feeling toooo bad it's day 9 for me now x

JH21 profile image
JH21 in reply to evilpunkypie

Thank you for your reply. I’ve not yet taken the HRI as I don’t feel they are bad enough. I’m just unsure as to whether these effects are from the injection. Xx

in reply to JH21

Hi J,The main reason I was super keen to have the HRT add-back with the injection is that I'm 41, so another 9 years before the average age of menopause. For women not yet at the normal menopause time, the HRT add-back helps to reduce effects of removing the estrogen hormone (ovaries no longer producing estrogen). The injection can lead to somewhat reduced bone density (ostioperosis risk), as well as reduced cardiovascular health. The HRT add-back helps to maintain bone density and cardiovascular health.

LEH199 profile image
LEH199

Hey hun I was exactly the same the day after I had my first infection (I’m on prostrap3) I was in bed felt really un well with flu like symptoms (sweats, headaches, bone aches etc) but once HRT (Tibolone) kicked in the symptoms calmed down xxx

JH21 profile image
JH21

I cannot pull myself together at all 🤦🏽‍♀️ I’m so tired.

Really hope this passes xxx

Robins53 profile image
Robins53

Hi, I had a terrible 3-months on Prostap 2 years ago as wasn’t prescribed HRT. I finally got referred to a decent BGSE centre endometriosis consultant who only prescribes Prostap as a last resort and always with a HRT prescription. I would never take Prostap again without HRT as some of the ladies have said that the HRT add back not only helps with the terrible side effects but the helps prevent Prostap from causing you longer term health problems connected to removing your oestrogen production.

I’m not one for taking meds unnecessarily either but seems like a good case for HRT in this instance.

Good luck x

I was on prostap for 6 months. I don’t recall the side effects kicking in so early, but did have tenderness in injection site (ask them to switch arms each month), hot flushes, low mood and bone pain. They didn’t work for me unfortunately as still had some bleeding and bad pain. But it was part of the process to the next treatment option...for me a total hysterectomy on the 27th of May!! 🤢 I’m 41 and will need HRT until the ‘normal’ menopause age.

JH21 profile image
JH21 in reply to

Hey, I am 29 but she wants me on prostap for 6 months and then full hysterectomy. She wants me to have the prostap now as to prepare my body for what’s coming.

With me been so far away from the average menopause age, she doesn’t want to take it all out then my body go into shock. Xx

in reply to JH21

That makes sense. My consultant was worried about the possible problems with oestrogen such as osteoporosis, but for the me the advantages far out weigh the disadvantages. So I’m all in for the total hysterectomy. Hope all goes well for you.

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