Endo & mental health - Slip and slide? - Endometriosis UK

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Endo & mental health - Slip and slide?

7 Replies

Hi, my lovely pen-pals!

I'm having one of those morning where I feel as though I've had an insight, but not quite sure. So, I was hoping to "think out loud", and maybe I'd find out if it's just me, or if this is real.

Here goes...

I think of myself as a robust and capable person, but it's dawning on me that mental health may be a very real aspect to endo.

I tried amitriptyline to try to manage the pain, but had a reaction to it yesterday ( pounding, fast heartbeat, shaking, dizziness, nausea, extra pain).

So, I called the GP to make an appointment. Just as the secretary was booking an appointment for me for that day, the line dropped. I called back, and she told me that they had booked all of the remaining appointments, and they could not give me the appointment. I squeaked again that I was having one of the "red warnings" from the leaflet, where you must speak to a GP, and she allowed that the on-duty GP would give me a call. After the call, even though I knew a GP would contact me at some point, I just started crying because I was tired, sore, scared, and had no resilience.

That was a tiny moment! In the regular run of things, I would have no reaction really, because I would have remembered I could always go to a hospital... But in that moment, I had no idea what my alternative could be, or how I could get there while feeling so weak and disoriented.

In the end, the GP did see me and advised me to stop the amitriptyline immediately, so I should be ok in a couple of days.

But, oh my gosh, that was major in terms of mental health - as in my mind was not functioning in a normal, resourceful way. That's worrying.

So... I think mental health is a real issue with endo - something to try to be aware of, and something to try to plan for somehow.

What do you think? I really wonder how we are ment to plan to handle this kind of thing?

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7 Replies
Bespp profile image
Bespp

Give yourself a big hug as this journey is long. Sharing with you some highlights from my book readings

in reply toBespp

Thanks Bespp, It was interesting to read that page from your book. Thank you. 🙂

Learning to say No - wow, that's a whole different large topic.

And allowing time and space to experience our emotions instead of trying to "turn them off" is another huge topic.

Lots to think about there! 🌿🌼🌿

Bespp profile image
Bespp in reply to

This is the best book i have found that has helped me with the mental side of endo. When the body says no by gabor mate. My endo journey has started 3 yrs ago, the first 2.5 years I tried to tackle it physically only which added a lot of load on the mind. Is only one the last 6 months i have started taking extra extra care of the mind and has started to work wonders. Pain reduced massively, wellbeing improved and what not. I am also seeking profesional help as well in the form of therapy as i think we need that extra help as the journey is tough. And on a tough journey no one should be alone.

in reply toBespp

Hi Bespp, I've looked up the book now, and decided to get a copy to read. Thanks for the reading recommendation.

Bespp profile image
Bespp in reply to

Awh I am so glad, hope it helps as personally was the book that gave me that gentle reminder of mindbody is a whole thing. And if the mind is not in a good place the body will start talking. And this is how i see my endo. As my body talking to me about what my mind has. As I am going through my therapy sessions I am finding out that a lot of things were buried and that needs dealt with so i am seeing that connection 1st hand. And the more I deal with my mind the less pains and aches i have in my body.

in reply toBespp

Hi Bespp, I think you're onto something. I noticed myself feeling angry about something - which my body decided to express as cramps. I'm sure the book will be a good read!

Hi LushaI thought 111 was only for the night hours when the medical practice is closed. I didn't know you could call 111 in the daytime

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