Sleeping and endometriosis

[Em_wilkinson96]

Hi everyone,

I was diagnosed with endo at the end of January this year due to an emergency laparoscopy (ruptured cyst) but still haven’t seen a specialist to explain anything about my endo or even have my endo removed. I have noticed whenever I am due on or it is that time of the month, my sleeping is so messed up. Sometimes because of the pain but sometimes there’s no reason for it, I just get so restless and can’t seem to sleep.

Does anyone know if this is likely linked to my endo? Thank you x

[KittyMum2BabyMum]

Hi. I’m sorry your struggling so much. Burst cysts are absolutely horrendous. I actually have the opposite effect during my time of the month - I get exceptionally tired.

I would suggest ringing the clinic and asking for an appointment to talk with the consultant, explaining that you’ve had a laparoscopy and you have some follow-up questions. Also, ring your GP, they can often be very helpful in the interim.

We are often left hanging, not knowing what is going on with endo. I recommend having a set of questions ready to go - what’s wrong? How bad is it? What are the next steps?

Sorry I can’t be more helpful. X

[Em_wilkinson96 in reply to KittyMum2BabyMum]

Thank you for the message! Cysts are the worst aren’t they, I hope you’re doing okay x

It’s been such a mess since I had my surgery, I was told I would have a 4 week scan to check the cyst then I would be referred to see a specialist ASAP and have surgery again ASAP. So I had my scan, my ovaries are still stuck to my uterus and I still have a cyst. When I have spoken with the secretaries at the hospital, they’re just saying we can’t give time scales but I feel like I’m left in limbo and I have been waiting to have endo removed since March 2020. It’s just so tiring! I’ll definitely ring the secretaries again and see if they can arrange something for me.

Thank you!x