Newly diagnosed -

[MrsIT]

Hi . im new here.

diagnosed on monday but dont yet know how much of it is in my body / locations yet.

They sonogram person is the one who finally saw endometriosis on my last transvaginal scan.

After diagnose its all a bit worse in my head as well as some symptoms, as i dont know what to expect fully , maybe ill have years of being in stage 1-2 (dont know stage yet) or maybe not.. or maybe itll get worse.... better.... its just so hard to know what to do deal with it, and GP just says its not serious.. yes i am not dying but its affecting my life and has done for years. now i know why, but even tho i function, i had so much time where i would cancel plans, be off work due to the bad periods and heavy bleeds... pain in tummy, lower back... checked for kidney stones.... list is endless.

i also got anxiety and depression , have had for years, so it all doesnt rly mix well.... my two kids are used to me saying im tired now, i got nausia , i am in pain but i usually power through most days. and i probably shouldnt.

anyway, Hello! im not very sunny today, although im trying.

[Hidden]

Hi MrsIT,None of that is fun, I agree! As for the GP saying it's not serious.... Perhaps they meant that it's not fatal. 😉 It is very difficult, as you've listed.

I'm glad to hear you now have the clue that it might be endometriosis. Now you'll be able to get onto an endometriosis management path, knowing what it is.

Wishing you more comfortable days. 💚

[Climbergirl]

Hi, I’m sorry you are going through this, I had a doc who didn’t think I had enough to warrant surgery or anything other than hormone meds. Being in pain constantly even on the meds caused me to reach out to an endo. specialist. He agreed to surgery and I had it about a month ago, my biggest fear going in was what if I made it up, what if my other doctor was right and its not enough to warrant spending that money. My surgeon told me I had it almost everywhere, all around my pelvic wall, my uterus, both ovaries, my bladder, my colon. And he said I only had stage 1 based off of how many were actual scar tissue spots. From what I have been told the pain and the severity of the spread isn’t really based on the amount and the stages are based on scarring. So you could be okay but don’t think that stage 1 or 2 is a lock down on how far you have progressed. If it is affecting your life it is serious, it doesn’t matter what stage is is medically listed as.