I think my 15 yr old may have Endomeitriosis... advice please!

[Warrior_Mum3]

Hi there,

I am new here and am after some advice/information/experiences. I do not have Endometriosis but have some knowledge of the condition. I think my 15 yr old daughter may have this condition. Funnily enough, it was a male GP that brought it up. As I don't have it myself I don't know what exactly how it feels, symptoms etc... I have looked thoroughly on the Endo website but it is never the same as talking to someone that actually suffers with it. Any advice would be very much appreciated xxxx

[Brambledoggy]

Might help to click on my profile and read my journey. I’m 50 and had endo since my first period but left undiagnosed so I didn’t know. If it helps, or you have questions just shout. I’m not a medic, but I am a warrior! Nina

[GoldenGirl2002]

I’m 18 and i have diagnosed Endo and suffered from age 13/14- what symptoms is she having? If you or her want to talk about it I’m happy for you to private message to answer any questions xx

[USgalwthendo]

Just want to commend you for reaching out to help your daughter. I begged for help at 14 when in horrendous pain and my gram told me to suck it up cause I’m a woman. Left untreated for 21 years and I’m infertile. Plus years of pain and suffering. So first and foremost thank you for listening to your daughter/daughters gp. Everyone can have different symptoms but for me I had tremendous agonizing pain during my period and right before. Also exhausted from the pain. Fatigue. Plus severe mood swings. And pain in my abdomen like someone was chiseling my uterus out. As I got older late twenties I felt like a spear was going inside my leg up and down my femur. Such bad leg pain. Plus bowel issues like diarrhea during my period. Headaches. Nausea during my period. Please feel free to ask me anything about endo.

[Washington1 in reply to USgalwthendo]

You've been through so much. Big hugs your way X

[Washington1]

Hi to a wonderful mum. Nice one for looking into this for your daughter. She may well have endo if she's experiencing pain, but this can only be confirmed via laparoscopy. Mine started in my teens and I'm now 50. Suffered with depression in it all and lacked the support that was needed. Your daughter is already in a better position. I was also told that every woman experiences a little period pain and to get on with it. Amazingly things have changed and female symptoms and experience is now far more important. In my teens, I remember writhing about on the floor. I managed the condition for many years, but then it either got worse, or I got too tired to manage it and ended up with chronic fatigue. I still experience very painful and sometimes agonizing periods.

What I've learned and I hope will be of some help to you. Diet. It is worth noting what your daughter is eating (maybe keep a diary) to see if there any foods or drinks that make it worse. For instance, I discovered that if I have more than 3 cups of green tea in a month, I can be in the most awful pain imaginable. Green tea, right.... who would've thought... I've also looked in to the gut/brain connection and take probiotics. My pain went undiagnosed for decades, so I may well have neuropathy to add, but your daughter with your help is in a much better position to get a different outcome. Adding to which, because of the raised awareness now, more treatments and help are much more likely to become available.

I pray that it will go well for you and your daughter.