Awaiting diagnosis & struggling

[StellaLunaMae]

Hi! I am waiting to be booked in for the surgery to determine whether I have endometriosis. (I am 27)

I've been diagnosed with severe PCOS and enlarged ovaries.

I went through an absolute nightmare of infections for 6 months in 2019 from an incomplete medical abortion which is when I feel all of this pain got worse.

I have been on the mirena coil for about a year now and get very irregular periods. Sometimes a week in-between and sometimes more than 4 weeks. I have spotting, I have lower back and upper thigh pain as well as in my hips just constantly. Sometimes it is dull and I can live with it but other times I have to just sit down and cry as a release! It's all making me so low.

I feel hopeless due to being so neglected by my doctors and constantly brushed under the carpet. (Long story)

I feel like it makes me constipated also.. before lockdown I was going to the gym regularly and felt better but after having covid over Christmas I feel completely weak and tired!

I am absolutely terrified that they won't find anything during my surgery and I'll be just as stuck and it will look like its all in my head.

Sorry for the long post! Just feeling hopeless and I'm desperate for someone to understand me!

[Anna_EndoUK Moderator]

Hi StellaLunaMae,​

I’m sorry to hear about the difficult time you've been having :-(. ​I was really worried before my first surgery that they wouldn't find anything either. Regardless of the outcome, please remember that we all know that you are not making this pain up!

If you need someone to talk to, Endometriosis UK have a network of support services that are available to anybody affected by endometriosis.

Our free helpline (0808 808 2227) is run by volunteers who have personal experience of endometriosis. The helpline is open most days and the times it is open can be found here: endometriosis-uk.org/suppor....

Endometriosis UK also run a number of support groups. Unfortunately, due to covid, we are not able to meet in person at the moment, but many of the groups are running online information and support sessions. The London facebook group is particularly busy. Please visit: endometriosis-uk.org/suppor... to find out if there is one in your local area.

I hope this helps and that this forum provides you with some support xxx