Hello everyone, just after a bit of advice and I suppose insight over symptoms I’ve been having.
Saw the consultant yesterday and he has agreed that a Laparoscopy is the way forward so just waiting for that now.
I’m 34 years old and Ive always had painful periods since they began and trouble with my bowel when on. I’ve put up with it for so long because I thought it was part and parcel of being female ( I know this probably sounds silly).
Over a year ago I started having lower right abdominal pain which would range from mild throbbing and dragging pain to moderate pulling sensation. This would come and go and I was told it was IBS when I went to the hospital. It was June this year I suddenly had new symptoms and the frequency increased. Has anyone had a sudden onset of new symptoms after being the same for years?
I had the odd jabbing pain in my legs or rectal earlier this year which I thought was odd but I dismissed it as an anomaly. June was when i suddenly started having frequent pains in my pelvis and September the following started and continues on almost a daily basis:
A range of jabbing/aching and sharp pains in different parts of my legs, behind my knees, my feet, lower pelvis, arms (on occasion), rectal. These flare up and down and I find I sometimes cramp when going for a wee. The pain is worse when on and then it does ease off. I know what I have isn’t normal but because I’m not in constant agony I almost feel like I should just put up with it. But when the sharp pains go through my legs it’s like an electric shock and can cause me to drop to the floor at times.
I guess I’m just worried that they won’t find anything and I’ll be back to square one. Has anyone diagnosed with endo had pain in the arms? I mentioned it to the consultant and he kind just dismissed it as unrelated straight away.
I’m aware that pain in the legs is fairly common but has anyone experienced it in the feet or behind the knees?
Sorry for rambling on and thanks for reading.
Amy
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I personally had a sudden onset of new symptoms. Initially the heavy periods. irregular cycle etc. Then about a year ago this got so much worse and more intense, the pain really increased too. Now (for the last 3-6 months - hard to tell because of the pill masking) I have bad bowel issues and even get my period from my anus. I think symptoms just change over time as endometriosis grows and moves of that makes sense?
That does make sense, I guess if it’s endo it could have been growing for years but only now has it got to an extent that it’s thrown out a load more symptoms?
Period from anus? I’ve had some blood but not to that extent. Must be very distressing.
Yeah, plus sometimes I think so many factors are involved I think symptoms genuinely vary anyway.
And ah, don't get me started. Thought I was going crazy initially! Finally got up the guts to ask my GP and that was what made her conclude I must have endo of the bowel. Been referred to gyno now but probably wont hear back for a while. Bizarrely I'm way more at peace now I have a possible explanation, even if its not the nicest one xx
I've just had a lap and waiting in lab results - it is either endo or inflammation in the pelvis from an infection. My pain gradually got over the years from the odd flare up to constant which included IBS symptons which I was diagnosed with. Since the surgery my IBS symptons have improved by 95% so going from a laposcopy is definitely a way forward - if you haven't got endo they might identify something else like an infection and treat like they have with me. They've given me antibiotics and removed as much of the endo/inflammed area as possible to do both. I also get tiredness, achy joints etc.
I really relate to this post, my endo symptoms aren’t as bad as others but every now and again I get a new symptom that worries me.I’m having a lap in January and I think it’ll provide that reassurance of understanding what is going on in my own body.
I’m thinking if it is endo the excision surgery will help to possibly stop it getting worse. If it’s not endo then at least I know and I can have a different mindset.
I think if you have had to see a consultant that suggests it’s causing you enough issues or concerns to seek help, good for you! So I think you’re on the best path for you.
Having said that, I saw a consultant two years ago, agreed to the lap then cancelled it as I felt like maybe I could just manage things....now I feel very differently and I do want to know what’s happening in my own body!
Hiya, thanks for responding. I feel almost like a fraud sometimes because I’m not in agony all the time, but if a friend came to me with her problems which were like mine, I’d be telling her to get it looked into as it’s not normal.
I’ve been told my Lap will be January latest so fingers crossed. I was so anxious for seeing the consultant. I am anxious generally and didn’t want my worries to be downplayed.
I’m sorry to hear yours got cancelled before and hopefully that won’t happen again.
Good for you for pushing for it. Women’s problems are so easily dismissed.
Yes I hear you, we are all experiencing our own level of suffering. We deserve to live a life without pain or worry! You’re right, we’d want our friends to seek help. It’s funny that we struggle to see it for ourselves sometimes! Xx
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