I’ve been trying to get my opp for a year and it was cancelled earlier on in year and now today! My pain is unbearable and Im so fed up and worried about the consequences of it not being treated I’m only 22 and struggling to get about every day life even getting out of bed is a task I’m constantly bloated and in pain! I’ve been in hospital 7 times this year 
Any advice?
heyy
I don’t have much advice on this but, wanted you to know your not alone. I am in the same situation my pain is unbearable and is spreading to my groin my thighs and my lower back. I’ve also started to get bad chest pains and out of breath soo easily which I don’t know if it’s related to the endo. I’ve been waiting on surgery for almost a year and although I understand with Covid things are difficult but I can feel it all getting worse and my GP has contacted the hospital to move my surgery but I am still waiting.
I just wish we would be taken more seriously, I am also 22 and I’m tired of not being taken seriously. I have already my had a miscarriage and I want answers on what’s going on with my body.
Good luck to you X
Always here if you need to chat I know I feel soo alone going through all this it’s nice to know your not alone Xx
I really hope you’re okay! Stupid thing to say as I know how hard it can be!
I’m 21 and have just had my first laparoscopy, finally confirming that I have endometriosis.
I don’t have much advice yet other than to not give up. Don’t stop asking for medical advice or for second opinions. I wasted 2 years because a gynaecologist gave me an explanation for my endo which doesn’t even exist. Find someone who will listen to you and do everything they can to help!
I hope that you can get the surgery soon and that it will give you some answers! Xx
I’m exactly the same I feel scared about my body and if it will get worse! I hope you get answers soon x
My lap was cancelled today too. Thinking of you. 🙏🏻Praying yours will go ahead soon. X
Hey, I'm so sorry to hear that, I had my first symptoms at your age and totally understand how you feel.
I don't know how much of this will help (its helped me quite a lot). You may as well try it while you're waiting for your op date.
For the bloating any other bowel symptoms it may help to take a probiotic for 3 months. UCL did a clinical study and Symprove was found to be the most effective (unflavoured version tastes bad so always get a flavoured variety). I have a leaflet from my dietician explaining the study and the other probiotics that are effective. Feel free to send a private message if you want me to send you the leaflet. I went for Floratrex because a small endo study indicated that endo reduces Lactobacillus levels, which means our body's anti inflammatory response is hampered. Floratrex reduced my daily pain and pain during my periods.
There are many cheaper brands such as biokult that you could try.
Can I suggest some herbal stuff:
If you can afford it I would seek out a good traditional Chinese specialist. If they have the understanding they can be outstanding at helping with endo symptoms. If you are in London I have a great one that I can suggest.
Pycnogenol (extract from pine bark) is clinically proven to help with endo period pain. It reduces it by at least 30 percent in all patients. Study used 60mg a day. Takes 1 month of daily use to start having an effect. I use 80mg a day and 120mg week before my period and during my period. Reduced pain from 8/10 to 2 or 3 out of 10. I couldn't find any side effects through research and don't experience any myself. Its a powerful anti inflammatory.
Serrapeptase is also meant to be helpful, please start on the lowest dose if you try it to judge the effect
endo-resolved.com/serrapept...
These plasters were recommended by my Chinese medicine specialist. To be used daily on the affected areas. My pain regularly goes away within an hour or 2 and will last for more than 12 hours. If used for 12hrs daily sometimes it doesn't return. Plaster to be used for no more than 12 hours. Can replace with a new one if you want to use for 24hrs
amazon.co.uk/dp/B07H4NQD3L/...
Both yoga and pilates have helped me.
At 1hr 20 mins of this video below there are stretches from a physio at Royal Free Hospital. They are good for the pelvic floor but many of them are good for endo too.
Resuming Endometriosis Services: What happens next?
endometriosis-uk.org/webina...
Particularly the diaphragmatic breathing, child's pose and dropping your pelvic floor in this selection below:
medium.com/@ThePelvicExpert...
Pilates for endo
Be careful with kegels, most women with endo have a tight pelvic floor so kegels will make it worse.
I hope that helps and if you're in London send me a private message and I'll give you the details of my TCM doctor.
Hope some of that helps
This is brilliant thank you so much for your help!! Stay safe and thanks again
Hi! I am totally with you!
Firstly make sure you are taking some magnesium if you can.. epsom salts baths really help!
I have found that going on a veg diet for a while has helped the pain reduce a little and make me feel lighter, I am already gluten and dairy free.. i know that bit is not easy but diet is a really big thing!
Next I am working with a nutrionist and have started on Turmeric and Serrapeptase, these help reduce inflammation (which as mentioned by others here is what will be adding to the pain).
And finally, massage massage massage... if you can do some really gentle mizan massage (online vids) not during period though.. this really helps too
Good luck!!
Brilliant! Thanks for your help stay safe and well c
I'm so sorry to hear you surgery was cancelled.
I got a tens machine and it's has really helped me. I got one with heat settings also.
It really helps with pain. But you have to be careful not to over use.
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