I am a thirty year old woman from Australia and I am feeling so concerned about my symptoms.. however finding it hard to get any confirmation or diagnosis’s from my specialist, as they are not willing to do a laparscopy surgery at this stage because I do not have overly painful periods and I’m not currently trying for a baby (even though a small endo cyst was found on my ovaries). I started getting lower back pain mildly this year and then a few weeks ago, in the morning I got a stabbing pain in my back on the right side and that radiated down to my stomach and pelvis with associated Nausea, shock and vomiting. This was determined to be kidney stone even though later scans did not show up with a stone. My symptoms now are constant lower back pain and cramping which is mild but uncomfortable, frequent urination, bladder pressure, heartburn, loss of appetite, bloating, Pelvic pain and tummy aches. Has anybody else had similar experience like this and started with an emergency room visit ? My specialist said that the endo cyst is too small to have caused the attack, I’m starting to feel like I’m going crazy because it all keeps being dismissed when I try to get help for it..and work out what it is I worry that it could be undetected cancer even though I have had had pelvic and ovary ultrasounds. My intuition tells me that it is endometriosis but it doesn’t help that it isn’t being confirmed. Anxious
Written by
Endolady22
To view profiles and participate in discussions please or .
Similar, end 18 went to A&E with horrendous pain, GP thought burst ulcer, turned out period started whilst there and UTI showed up.
During 19 back and forth GP with pain and thinking UTI, but only a couple of times. Had an ultra sound last November to check kidneys and bladder. Fibroids showed up, I’ve always had bad period pains, but no GP considered gynae. I saw a gynae privately and within ten minutes said Endo. Had lap Feb, confirmed and some removed, but turned out to be deep.
Go with your instinct that you know something is wrong, MRI can sometimes show endo, but talk to a specialist.
I’ve had CT colonoscopy to check bowel for cancer, due MRI to check small bowel. I’ve lost nearly four stone since last December and no one knows if it’s endo or gastro causing it.
Thank you so much that helps ! That’s interesting my period came three days after the hospital ER visit. In my early twenties I had constant urinary tract infections, well mostly what they thought were urinary tract infections but The samples never grew anything when they went to the lab.
Loads of those last year and some this, it gets harder to distinguish if you have an infection or not. I also had a diagnosis last month of Lichen Sclerosus, similar symptoms to thrush, but another thing the body does to its self. That also explains some of why I kept thinking UTI.
I remember two occasions where I ended up in A&E and stayed overnight as they thought appendix but period started. No one said anything other than you can go home. I always managed, heaven knows what’s going on now 🙄.
I’ve read that a small amount of endo can cause pain and vice versa, don’t let the lack of pain put you off, there are lots of other factors. When I first saw the gynae the pain wasn’t as bad as now, but there. He could see all the urine tests I’d had done on the computer and lack of actual infection, he asked questions about bowels etc. and was definite about diagnosis. I so wish he’d been wrong 😂.
Yes exactly, so many times have been put on antibiotics for utis but for no infection. Do you feel full after eating small amounts ? I’m finding lately that i feel full very easily and if I keep eating a bigger amount, I feel quite sick like I could throw up.. like there is almost no room.
Yes I do, haven’t actually thrown up yet. Yesterday I tried eating a bit more, little but more often, by the evening I felt awful, and took ages to go to sleep. I’m now a size 10, was 16/18 in December last year, but some of those feel baggy in places (not belly 😂) it doesn’t feel right, I’d imagine because I didn’t set out to do this, I know a few pounds could be lost. What was annoying the endo specialist twice said well done, and I’m going no, it’s because I can’t eat much 🙄
Are you finding it doesn’t matter what the food is, or are you managing some foods better than others?
thank you, yeah it’s not a nice feeling like you don’t want to eat anything when food should be enjoyed! The feeling full al the time and heartburn for me has only started recently, I’m a size ten to start with. I was worried the heart burn and feeling full could be related to cervical cancer.. however I have had ultrasounds of my ovaries and blood tests and nothing other than Endometrioma and fibroid found, It’s just seems odd, but I’ve seen on this forum others have had this experience aswell. I wonder if that means that endo implants are in the stomach... I find more liquid based things I can get down easily, like açai bowels with fruit. Do you find that certain foods trigger your symptoms ? Anything for me with bubbles like Diet Coke, gives me kidney pain straight away.
The CT colonoscopy was to check for bowel cancer, the MRI was I thought just for small bowel, includes pelvis/abdomen. The first gynaecologist arranged gastro dr to do this and has said he doesn’t think it’s all endo, but could be.
Discuss options with GP, mine has said he’s done a referral to a new diagnostic clinic, they check for other things.
Interesting observation here, Endolady22! I found this thread because I'm searching for guidance about suspected kidney stones after returning from A&E with an all clear CT scan and told "well, it must be stones".
I'm pretty sure it IS kidney related because of all my other symptoms - when I go to see the GP next, I'm going to ask for a referral - but your reply here has given me food for thought... literally about food! I manage my chronic IBS by eating low FODMAP. After gaining some weight during lockdown and then having a terrible bout of Covid, I decided to go back to the restrictive stage of low FODMAP and eat foods that had no trace of anything that would spark an inflammatory response. However, I then started to reintroduce small foodstuffs with complex carbs and immediately I feel the impact in my right kidney. I wonder if our health symptoms are exacerbated by something we're eating, even if it's only a very small portion of it?
In terms of your initial pain, shock, vomiting, I had the exact same, they assumed kidney infection but when I had a scan they found a tubo-ovarian abscess (which they think had been caused by bacteria growing in my endometrioma). Just another possibility!
Most people who suspect they have endo do have endo! We’re not making these symptoms up for fun! It’s a horrible disease and everything you’ve described sounds like endometriosis symptoms from all the research I’ve done.
In the U.K. I had to pay for a private appointment with a specialist for them to tell me they believe I have endo (I’ve not yet had a lap to confirm). But I’d really recommend meeting with a specialist, just being heard and told that they believe your pain can be a very important thing. Wishing you all the best xx
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
I worry that it could be undetected cancer even though I have had had pelvic and ovary ultrasounds. My intuition tells me that it is endometriosis but it doesn’t help that it isn’t being confirmed. Anxious 
Help for a newbie in despair!?!
Can GP refer you to a BSGE centre EVEN THOUGH GYNE SAID NO
Doctors no help. Pain severe. Need help
Endo related back pain?
Lap with general gynae found no endo, should I pay for a second opinion with endo specialist?
