New to the community

[Endo_enemy]

Hey guys i am new to the community. I was diagnosed in May 2020 after suffering for over 16 years. I am looking for a genuine support group so I can learn more about my condition and support and help other women who are suffering from chronic illnesses. Iv started a blog on my journey cos i love writing so feel free to connect with me on here or instagram. My tag is @endo_enemy

Thanks guys 🎗

[Moon_maiden]

Hi

Did you have a lap for diagnosis or are you still waiting for this part?

I was diagnosed last December at 51, I've 'coped' with monthly pain for donkeys years, but it got worse.

What symptoms do you get?

[Endo_enemy in reply to Moon_maiden]

Hi i was diagnosed in unique way . They thought i had colon cancer so i was on fast track cancer list. Did a colonoscopy only to discover a tumour like ball in my colon. After biopsy turned out to be endometriosis. Symptoms are extreme pain!! Chronic constipation , vomiting, back and leg pain. Chronic fatigue, weight loss, pelvic pain. The list can go on.

[Moon_maiden in reply to Endo_enemy]

What’s the plan for the endo?

At lap the consultant discovered deep endo, but he thought symptoms after with digestion too extreme for endo and I had a CT colonoscopy in June as fast track, but was clear. Still none the wiser re symptoms , I’ve seen the endo specialist and now waiting for hysterectomy (fibroids mainly) and removing further endo.

How much weight have you lost? Mine is just over three stone since December.

[Endo_enemy in reply to Moon_maiden]

Im meant to be on fast track for surgery. Hoping for surgery in november or december. It will be excision surgery. You said you were already in menopause age right? Are they giving u any treatment or pain management while u wait. Im quite slim already so when i lost half a stone i looked very sickly. Im slowly gaining it back.

[Moon_maiden in reply to Endo_enemy]

Weight loss can feel odd, I understand what you mean. I’ve gone from size 16/18 to ten.

I’m on various and tried others, amitriptyline, had this a couple of months, recently increased, which I think is helping. Also Oramorph and Tramadol depending on day. Did tidying and moving things in sheds and setting up racking. Abdomen was not happy after 😂, Oramorph to try and settle it.

Technically should have hit menopause, consultant hoped that Zoladex would bring on natural menopause. I can’t tell yet as only finished Zoladex six weeks ago. A GP said I should get used to UTI and kidney stones at my age and offered HRT last year, she went huffy when I said I still had periods. 🤣

[Endo_enemy in reply to Moon_maiden]

Wow that is serious weight loss. Mine happens because of my period. I can't eat solid foods for at least 2 days and then I'm constipated for like 10 days, im not eating properly. Zoladex to my knowledge doesnt bring on natural menopause. Its a temporary menopause that lasts either 4 weeks or 3 months depending on the injection. Hmm very interesting the different info we get from our gps

[Moon_maiden in reply to Endo_enemy]

Constipation for so long isn’t good for you. You can run a risk of infection with a build up of waste. There are natural laxatives such as senna or prunes. I take Laxido and lactulose. At the moment I’m trying not taking them, I do this occasionally, it normally fails.

The consultant hoped the Zoladex might kick start menopause because of my age, it wouldn’t on a normal basis. The symptoms could possibly ease naturally if it did.

[Pinkmice]

Hi

Like you I have suffered over a long period of time with endo , have had my womb out

me and my late husband decided that me ending up in hospital each month was not

right for both of us.

Since then have loads of trips to the hospital,while on holidays,in my working life

currently with bad kidney infections.

Got an appointment in Oct this year to see another gynae - as well as menopausal

have had an embolism which nearly ended my life ( caused my husband death in

2010) I have terrible mood swings from tears to angry (tears I can cope with)

But to be angry does not achieve anything but this speed I get these feeling

concerns me.

Had to resign a job back in September last year because of ladies not understanding

and basically told that I am a waste of space.

So I understand the heart ache you are currently having in your life

Love and hugs

[Endo_enemy in reply to Pinkmice]

Your story moves me and i am sorry that you went through and are still going through such ordeal. Thank you for sharing with me ❤