Symptoms

[Love_Yellow]

Hello everyone

I went to see another consultant due to my symptoms returning after my OP in October last year.

Results from my MRI show that my bowel I attached to my uterus again, so I’m on the waiting list for my second OP.

My consultant asked it I have any bowel or bladder symptoms and I replied no, since thinking about this question I am starting to think if I have been experiencing symptoms but just thought it was normal for me.

Please can you share what symptoms these may be. Xx

[SJrose]

I've had problems that I thought were all bladder related for several years now.

Kept having terrible pain (in what I thought was my bladder) and I would check my urine on a dipstick, it would look positive for an infection so I'd go and tell the Doctor and get antibiotics.

Weirdly every time I sent the sample away there would be no infection detected.

Now I've been diagnosed I've realised that what I thought was all bladder pain was endometriosis pain.

It's funny what you see with hindsight and how you can adapt yourself to coping with pain.

[Love_Yellow in reply to SJrose]

Thank you so much for your reply.

Hello s have been experiencing bladder symptoms like feeling like I’m desperate for a wee but getting to the toilet and it been a trickle. Pain in my right side when I need the toilet and slight stinging when I start to Wee.

This is something I have never thought of been symptoms of endometriosis.

I believe us women are very strong and that’s why we have been chosen to go through what we go through. We are all AMAZINGLY STRONG WARRIORS. 💪🏼💛xx

[Moon_maiden]

Not so bad this year as I know not to sit for long, but last year needed to go very often and most tests were negative, couple uti. This year is worse for constipation, if I don’t take laxatives each day, the bowels don’t function properly.

It’s always best to think back a year or two and see if you can compare, might only be subtle. I was fine until all this started.

Hope you don’t have to wait long.

[Love_Yellow in reply to Moon_maiden]

Do you mind me asking what happens if you were to sit for to long please?

I have alway struggle with constipation but I have alway thought that was normal for me. I was told by my GP I keep up with Laxatives but days when I’m not well and in bed most of the day I don’t take them.

A few weeks ago I was going everyday and without a struggle, lately I have changed again to how I have always been, 2-3 times in about 2weeks and finding it a struggle.

I really hope I’m not waiting to long either as my pain is becoming daily and more painful. I’m currently taking 60mg Codeine, Paracetamol and so days that doesn’t touch the pain so I’m taking Morphine as well.

This site has really helped me mentally been able to talk to people that are going through the same and understand.

Thank you so so much for replying. Xx💛

[Moon_maiden in reply to Love_Yellow]

If I sit upright I end up needing loo after ten mins or so, abdominal pain and a sort of nerve type shaking feeling in abdomen. I think the amitriptyline has helped a bit. This could be endo or fibroids, after lap he did say nerves are effected. Before he just said he’d not come across that symptom. It’s not so bad in a recliner.

Painkillers, especially opiates can cause constipation, you may need to take the laxatives to counteract this. I find when I don’t take them the pain and bloating gets worse. It was a GP, who was also a gynaecologist, at out of hours who first prescribed. She knew straight away what was causing the pain.

Every time I take morphine, I take lactulose to make sure. its important to go everyday.

[Noodle1984]

If you’re having issues with constipation it could be the pain meds. Have you removed gluten, dairy and sugar from your diet? It could really help to bring down some of the inflammation on the inside. I had stage 4 recto vaginal Endo removed in February. My rectum was fused to my vagina on the inside. It took almost 3 hours for them to just separate the two (2 surgeons too!). At my worst I would have diarrhea 6-8 times a day. I would get what I would call black out diarrhea pains and and a shooting rectum pain when I was on my period. Anytime I had to go poop I would get a shooting pain up my rectum that was only helped by finishing to relieve myself (hopefully not tmi). I would also get a lot of cramping from having to go. Hang in there 💕

[Lindle]

Are you being referred to a specialist centre as when endo shows on MRI affecting the bowel you must only be treated is such a tertiary centre.