Haemorrhaging cysts/adenomyosis - Endometriosis UK

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Haemorrhaging cysts/adenomyosis

Yotom profile image
3 Replies

Hi ladies,

Have any of you experienced haemorrhaging cysts, particularly recurrent ones? I’ve got my second confirmed one, first was 3cm on the left and now 4cm on the right. Just very confused as the left hurt significantly more - and because I have a Mirena which is supposedly meant to prevent them from growing to start with... Pls share your experiences with me, and how you (hopefully) managed to control them!

On another note, have any of you been told you have adeno only for another doctor to cast strong doubts and disagree?

Thank you!

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Yotom profile image
Yotom
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3 Replies
RGEB profile image
RGEB

Hey!

I suffer with these and have done for the last couple of years. Some have gotten as big as 6cm and were absolutely agonising. I was in hospital for 2 days recently. Other times I’ve had them and not even known they’ve just showed on a routine scan.

Unfortunately my consultant hasn’t helped me at all. Said they aren’t normal but they’re normal for me - marvellous!

If you have any more info/advice that’d be amazing for me too.

Xxx

Upsdog profile image
Upsdog in reply to RGEB

Hi I have had about four in the last five years and had the coil in, my last one was 10cm so they decided to remove it and had some endo removed as well! I think they are common to return just ensure you keep talking to them and get a scan ( I went private in the end) and now can email my consultant whenever it’s so much better! There are good ones out there I promise! Good luck and keep going and asking questions.

SunnySwim profile image
SunnySwim

I got diagnosed with adeno during a scan a few weeks ago...

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