Hi, my partner has been diagnosed with endometriosis and for a while now has been really struggling to eat anything because it causes her to feel so bloated and uncomfortable. We’ve tried just eating little bits rather than a big meal but she says even the tiniest amount causes her to feel incredibly uncomfortable she has quite an active job and has passed out once at work and I’m concerned it’s because her body isn’t getting what it needs.
I was just wondering if this was something that anyone else had experienced and found anything that could help?
Not always had the best of support from our GP so I always like to try and go in there with some information to try and prompt them with.
Thank you in advance
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Delwin87
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Yes I am the same I do not stop losing weight! It's so frustrating when you look forward to something and you just cant eat it! I tend to have smoothies, soups or just snack thoughout the day like carrot and cucumber sticks with hummus. Chopped up oranges and pineapples anything like that really. I was told by my gp milkshakes and hot chocolate but I feel that getting something in full of fruit or veg is best. I personally found I have eaten more since I ve had my adhesions removed. But I still have pain every day and eat child sized food portions. I do have vitamins but I'd check with gp first for anything like that.
Good on you though for posting on here it must be hard being on the other side!
I would go back well in current circumstances phone, the GP though keep on at them
Didn’t see your posting before, yep, loads of issues. She’ll appreciate your support 😊 as it’s very hard to deal with.
I’ve been told it’s symptoms of endometriosis.
Try contacting the GP and if possible someone who is likely to be slightly knowledgeable. I’ve found Laxido better than lactulose, it’s always individual.
Hope she gets something sorted ASAP, be very interested to know any outcome
Well done you for posting. We are all so different. The trouble with us ladies is that all our bits are in the same area. Yes, I had a lot of bloating and gas but could eat as I could not afford to loose weight, it did not help to have Endo on the ascending colon, thank heaven I had continual support from my lovely hubby.
Where is your partners Endo and what meds is she on?
I've found following an anti-inflammatory diet helps so much with pain relief. Personally I cut out sugar, caffeine, wheat and dairy and am eating more fruit and veg. It took a few weeks to find out what worked best for me.
Do some research on anti- inflammatory diets and see if it helps you too x
Hi, very supportive for your partner for you to write on here. Emotional support is so important for women with endo.
Have a look into anti-inflammatory diets, cutting out caffeine sugar dairy gluten and wheat, sounds difficult and it will be but it is worth it! It helped my bloating and symptoms so much I only bloat once a month on my first day of bleeding and it’s worth a try.
I have had endometriosis since 2005/6 and I wasn’t diagnosed for ages- I found by process of elimination that if I cut out the following:
Sugar
Processed fats
Gluten
Alcohol
My symptoms including bloating really improved. Sugar although it seems comforting I found really aggravated my stomach I have since read often that it doesn't help inflammation. I now really try hard to avoid buying too many ready made meals and snacks. Swapping gluten free cakes for fresh fruit and nuts. There are loads of sugars in alcohol and again, although it is initially ok it aggravates inflammation and your liver has to work hard on breaking it down. In recent years I do everything I can to support my liver function and gut function and this has given me a more pain free life and improved my energy levels. Limiting the amount of caffeine and swapping to herbal teas and coffee substitutes like Dandelion Coffee really help- again coffee and tea feel like a boost but actually the liver has to work hard to break it down. Its not one thing alone its a whole picture, but this has really helped me lots. I hope this helps you both, Lx
I know the feeling exactly.I had the same my appetite was very poor and even if I eat a small amount of food I was bloated straight and couldn’t eat.My last year was the worth one.Always tired and fainted.Feeling full and sick.I am a chef so used to work long hours in busy,without touch any food.
The body suffering and will be asking back one day.
Your dear partner going through a lot’s and faces a pain.But this is amazing you try to help and looking answers.
When I told my Gp the problem she gived me Molaxole or Macrogol this fluid powders.
What’s really start to help.
Clean out all the toxic and make me sometimes so hungry.
I did eat small amount always the half and more times and got a fresh juice machine to drink.
Lot’s of vitamins and that’s help with a tiredness and even to swallov anything hard I know.
Plus I got so bad acid reflux and start to use the silicol gel to drink.That’s help.
I hope she will be better soon.
But in a funny way ones this sickness saved me to get in a restaurant a food poison because I couldn’t eat.😂🙈
So always look for a brightside and don’t give up!👍
I find eating the hardest, I am very active so I do snack as I feel I’m getting hungry. I live in eat natural bars, they are small but full of energy. I only break off bits as I need. A quick pick me up is dark chocolate. Other food breaks are carrot sticks, cheese, cracker, cucumber etc. It’s a strange diet and I do miss sitting for a meal but still try at night as I feed the family so just dish up, eat a little of each item and that’s it. Doc gave me tablets to help but I’m not a fan of medication due to other side effects xx oh and you are a great partner!! 😘
There is a book called “endometriosis health and diet programme”
By dr. Andrew s cook.
It’s on amazon and I’m only a few pages in myself, but the reviews on amazon are great and for me just knowing that this is an issue that I can learn about has helped.
Maybe worth taking a look? I to loose weight 6kg during this last flare up you just feel so bloated and don’t know what’s causing it so you simply stop eating, I’m hoping this book will give me the confidence to enjoy food.
Sorry to hear that your partner is feeling this way.
There could well be some digestive healing needing to take place in ordee to be able to absorb nutrients.
However, there could be something going on in the upper digestive tract that needs to be diagnosed and treated. That's to say that Endo could be contributing to the problem, but there could also be an ulcer or inflammation causing problems.
I would seek out the GP to get them to rule out anything of that sort or refer for tests.
Overgrowth of candida albicans in the gut can cause bloating, and needs to be dealt with by increasing intake of good bacteria in the form of probiotics, while avoiding yeast and foods that contribute to overgrowth of candida.
A nutritionist will be helpful.
Digestive enzymes will likely be needed until the body starts producing its own. You need to take one after each meal.
There's a very good book by Dian Shepperson Mills called "Endometriosis: A Key to Healing and Fertility through Nutrition".
I thoroughly recommend it, as it helped me immeasurably.
Hi. You have done the right thing in asking for help. Since May last year, I have put myself on an exclusion diet. I was told in passing the word endometriosis, but I was never explained what is this illness, so me and hubby did all the research. Food made me ill and in constant pain. I viewed food as a poison and did not want to eat any more. So, since May, to reduce œstrogen levels and reduce flare ups, I am free from :gluten, milk, soya, caffeine, chocolate (contains both milk and soya), brown rice, apples, apple juice. No tomato puré and no hot spices. I was told at a London hospital that 50%of women with endo will have associated IBS. I take supplements such as magnesium glycenate (highest absorption of magnesium by the body), vitamin D (immune system), vitamin B12, iron. Evening Primrose can also help. When in pain, I distract myself with a film and a hot water bottle, if the pain is bearable. I have found that taking CBD tablets from H&B also helped to feel less pain and relax a bit. My husband has been my rock by ensuring that I have the same meals as every one else, like we made mash potatoes and braised cabbage last night, instead I cook for myself a mix of sweet potatoes and normal potatoes, add a bit of almond milk and very little butter, I find it a calming food on my tummy, comforting, I can eat like every one else, I had the braised cabbage and gluten free sausages. I have coconut milk, almond or oat, I buy gluten free bread, gluten free pasta, gluten free cakes, I mix white rice with quinoa, and online vegan chocolate. There is also vegan almond ice cream which is really nice. It's possible to make wipped cream from coconut cream, look online. Vegan mayo also exists. It's a bit of an overhaul but it's manageable while waiting for medical treatment. She could try to reintroduce each food separately and see if her body accepts it or not. The book by Dr Andrew Cooke is recommended. You could both take it as a journey of discovery. Take good care of both yourselves.
After I was finally diagnosed with endometriosis I had been feeling so unwell and not sleeping I was absolutely miserable and felt like what was life worth.
The Doctor Who deliver my diagnosis didn’t seem to have much in the way of help or support or knowledge of the disease and I was new to understanding what endometriosis was so it left me feeling very alone and very frightened I didn’t trust the GP to have my best interests at heart and was they booked me in for a laparoscopy I knew I didn’t want to have an operation that wasn’t going to make me better and comes with its own risks
I decided after taking on the information that I would do everything in my power to make myself better - two weeks later I went to fully vegan my partner like you was supportive and decided to do it with me , we’ve now been vegan 2 1/2 years I haven’t even heard from The Doctor who booked my laparoscopic or any hospital.
I actually started feeling better two weeks in and thought it’s just a coincidence and then a month later I was still feeling good and this continued to today. I believe eating other animal products interferes with the female productive system and hormonal system I’m sure it interferes with the male hormonal system also but women have so many areas that can cause complications we feel it more from our diet.
I had a pretty healthy diet before going vegan but I was eating chicken and eggs and dairy still ... removing these from my diet has made a huge difference in fact it has been what has saved me from going insane with pain.The laparoscopy never materialised and no doctor ever reached out to find out if I was being looked after and luckily I have a very supportive partner but I would feel for anybody on their own in the situation as it is very lonely very painful very stressful and very disorientating
I hope your partner gets some relief soon and I really do think she should consider going vegan, there are some beautiful recipes for a lot of meals out there and I’m so happy I made that choice.
I’m so happy I made that choice. It’s a clean Easy, healthy stressfree way of living without damaging your body or eating animals and damaging the environment.
Whilst it may seem daunting it’s very easy once you get the hang of it after about two weeks and there is lots of online help.
Good luck to you both .. there is nothing like a living life without pain so I feel any change in diet is worth sacrificing for a stressfree pain-free life 🌱
Hi Delwin87, as a few others have commented, it's lovely to see a partner advocating for their other half and looking for help. You sound like a lovely person!
There are so many things it could be and reasons for the bloating and appetite, as others have commented endo is so different for each woman and all of our insides are so linked (sometimes literally bound together with adhesions)
For me, bloating and limited appetite came down to one thing....constipation! I would always have said, no I don't get constipated, until a doc and my surgeon consistently told me on palpating my abdomen that I was very 'full', usually when I was in a flare. I had a lot of bowel endo removed few months ago and still struggle with pain, digestive issues etc. I still suffer with sudden bloating, we likely always will, but changing to a high fiber diet and introducing a few key things has helped me. I add a 4 seed mix to nearly everything I eat lol, Flax, Sesame, Pumpkin and Sunflower. Add to yoghurts, cereal, salads, soups whatever. I eat good nuts too daily if I can, walnuts, pecan, non palm oil peanut butter, you name it.
I avoid wheat if I can, but do have spelt and rye which are so much easier to find these days. I'm not coeliac or intolerant to wheat but system finds it easier without it 90% of time. Porridge works as a great mover for my system too
I found a new love in my life. Prune juice, it's not as bad as you think and even a small glass each day works wonders. If you live somewhere wher Sunsweet brand is available, it's the nicest.
And water....WATER WATER WATER, I don't like it plain, so often add little squash, but honestly it flushes the nasties out and keeps the digestive system open. Being dehydrated can actually bloat you a lot and make you feel awful, contributing to everything, even passing out, or feeling low, dizzy etc. Again, I'd say, 'no I'm not dehydrated' but then looked beyond feeling thirsty to less obvious signs, dry skin, feeling headrushes and dizzy, yellow pee, tired looking, most of us are dehydrated a lot apparently.
Maybe consider a probiotic like Super 8s Udos's Choice or Optibac Extra, taken for a month a few times a year too.
Like I said, I eat a lot easier and feel better when I keep this regime up. I consider it like a prescription of sorts, that's how my consultant gynae describes it.
I'm not a medic and what works for one doesn't always work for others, we are all so different but hope above might suggest one or two things to your partner and hope she is staying well. The world is a bit crazier than normal right now, so hope you guys are both doing well.
For first thing reduced her information start moringa tea ones a day. And eat Oatmeal cereal.try to eat small portion.moringa tea is best for endometriosis please try
Hi, sometimes when the pain is awful I struggle eating too so I can suggest a few things that have helped me. It seems irrelevant but I find better pain management helps if it’s the pain causing loss of appetite. Painkillers, heating pads, lots of sleep and rest, staying hydrated, etc. Particularly with an active job rest is essential. Also it might be worth checking with a doctor if she is on any prescription medication, as that can sometimes effect appetite. In terms of food it might be worth looking into a low FODMAP diet because endometriosis can cause IBS and bloating, so avoiding foods that cause excess gas in the stomach (e.g. broccoli, beans, apples etc) can help. Also limiting things like dairy, gluten, caffeine, and red meat can really help as these can be exacerbating the issue for some people . If she struggles eating anything at all fruit with dairy free (if possible soya free) yogurt could be an option with walnuts or something for healthy fats. Homemade soup is another option because you can control salt and add lots of vegetables for nutrition (since it’s cooked for so long it should be easier to digest), also plant based protein shakes can help (whey protein can upset the stomach). Anything soft and really easy to digest should be ok as long as it’s low FODMAP. Long term this probably isn’t that useful, but if it’s a flare up it should make it a little easier. Sorry for such a long reply, I really hope it helps x
I have found, eat the foods you like when your hungry and try not to over think about the food/ eating not eating. That adds stress and then less likely to eat.
Turmeric is good I find in warm milk help bloating.
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she has quite an active job and has passed out once at work and I’m concerned it’s because her body isn’t getting what it needs.
Worried sick about our daughter. 
Today's Laparoscopy - Utterly pointless, and I'm still in the exact same situation!! And family stress is just making it worse
No diagnosis - help!!!
15 year old with endometriosis?
