Could I have bowel endo

[Pollypot]

Hi I was diagnosed last October with Endo after many years off being fobbed off by the doctors. I had a laparoscopy and since then I’m getting much more pelvic pain and loosing a lot of blood from my bottom when I have a bowel movement. Also I can’t seem to eat anything without having the ergentcy to go to the toilet, is this normal with Endo or could it be that I have it on my bowel. The doctors didn’t tell me where the Endo was after lap and I was to drowsy to ask questions. I would be grateful for any advice as I find it a bit worrying.

[Moon_maiden]

Hi, ask the consultants secretary for a report. Shouldn’t there be a follow up appointment.

You’re entitled to your medical records free of charge as well. I learnt more once I received the letter afterwards.

[RDunc]

Hi,

I have endometriosis on my bowel as well as other places and that does sound like bowel endo! It sounds pretty similar to mine. Having it on the bowel is very rare so I would ask the hospital for your post op report - you are meant to have a post op consultation after about 6 months but I was lost in the system so didn't have a post op consultation, only found out when I finally got another hospital appointment.

[UnicornKisses]

You should definitely contact your doctor, I have bowel endo and don’t have those symptoms. Although it may be the endo, it’s not normal to have rectal bleeding. Good luck ❤️

[Pollypot]

Thanks for all your replies I have an appointment with the consultant on 14th of April if it doesn’t get cancelled due to Coronavirus. If so I will make an appointment with my GP to discuss it. Stay well everyone.

[Ljayne]

Hello there, I have bowel endo. My womb and my bowel are joined together because of it and I lose a lot of blood from by bowel during my period. I would definitely speak to your consultant. I had an MRI scan (suggested by my consultant) which confirmed this was the case.

It was due to be operated on but as the waiting list was nearly a year and the recovery period (I think 3 months) I just had an op on my womb to remove all endo so I can then concentrate on my fertility.

Please let me know how you get on and I wish you all the very best.

[kazzaxx]

I only discovered that I have extensive endo because I was bleeding from my bottom, at the time of my period, leading to more in depth investigation- I had previously had numerous ultrasound scans for pain around my ovary/bowel area and had been told I must have IBS!

The extent of my endo was discovered from an MRI scan, which showed where it affected my bowel etc. and is too extensive to operate.

Since being prescribed cerazette and no longer having periods, I no longer have anal bleeding either.

Hope you get your results and a solution soon x