No endo found...

[Bicky123]

Hi all

This is lap no. 3, and after keeping a pain diary for 1 year I've just had surgery. They didn't find any endo, but I've been been in almost daily pain.

I feel like I've lost my mind! Obviously its great nothing was found (endo found in previous laps), but I'm at a complete loss as to why I've been in so much pain.

Any advice?

Thanks x

[Hidden]

I’m sorry you didn’t get answers was it a endo specialist or regular gynae ? they can sometimes miss endo lesions as they don’t recognise all forms of endo so complex. Could it be scar tissue that is causing the pain & symptoms?

I would go back & depending on your situation see if the gynaecologist or GP can manage your pain it’s not okay to be suffering so much xxx

[Bicky123 in reply to Hidden]

Thank you jess

I didn't meet the surgeon I thought I was under, who is an endo specialist.

One of the nurses did mention they found some adhesions.

It's very upsetting, and I felt like I've wasted everyone's time

I think I will see how the pain goes but from being on codeine nearly every day it makes no sense.

Thank you so much for your advice xx

[StefaniaJW]

Well, if the surgeon who performed it was not an extremely well-trained excision specialist, they probably couldn't recognize your lesions (endo lesions differ in colour and type and not all specialists recognize all). Adhesions can be a sign of endometriosis by the way.

I suggest you look into dietary and lifestyle changes as well as supplements and maybe a progesterone-only pill and in the meantime book an appointment with a truly experienced and well-trained endo excision specialist. Please PM me if you want names of the best ones working within the NHS

[Bicky123 in reply to StefaniaJW]

Thank you for your response and advice. I think it would be good to look up the specialist surgeons as you suggest, will message you.

Alice x

[Afrohair in reply to Bicky123]

Sorry to jump on post but if possible could I have names on nhs for endo specialist

[StefaniaJW in reply to Afrohair]

Yes, please PM me