Advice please : Basically I was diagnosed... - Endometriosis UK

Endometriosis UK

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Advice please

Joolzrich profile image
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Basically I was diagnosed with endometriosis in Oct, they managed to remove it and also removed a growth, endo was on my bowel which they couldn’t remove as it had a high risk of damaging my bowel ............ my follow up appointment was a utter waste of time basically I have no idea of any staging of endo Was asked how I feel about surgery on my bowel, and told it up to me about hormone treatment as it would only help pain I was discharged and told anything changes go to gp and get referred back, what do I do ?? The more I leave it the more it feels like it’s something I shouldnt just ignore, What would u do Iam at a loss, according to my letter the hospital sent to doctors I have scarring and adhesions on the pouch of Douglas and would still have symptoms 😐

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Joolzrich
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Kirst625 profile image
Kirst625

You poor lovely, it sounds rough for you right now. Are you being considered for referral through to a BSGE accredited Endo Specialist Centre? As I think you may qualify by the sounds of it with having Endo on the bowel and other issues that don't sound like they should be managed or treated on under general gynae department. Google NICE guidelines for endometriosis and have a read x

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