My Story πŸ’›: Raising awareness... - Endometriosis UK

Endometriosis UK

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My Story πŸ’›

edodd24 profile image
edodd24
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Raising awareness!!!

ENDOMETRIOSIS πŸ’›πŸ’›

My story - Post op images included!

It's been one hell of a journey since having my second Son (June 2017) but I'm hoping this is the start of pain free days 2 enjoy with my boys rather than dosed up stuck in bed days on end or on the toilet for hours unable 2 even go! My story began with non stop bleeding after birth for 16months straight (odd day off) constant pelvic pain, all IBS symptoms, bowl issue, night sweats and god knows what else so with my amazing doctor we began my journey of started back with Depo injection as I've always been on with no periods for the majority of my period life (10years) and no problems after my first child. After several blood tests urine samples later still normal. Next started the useless A&E visits, moved onto 3 different pills all no affect! Moved onto copper coil (absolutely body destroying piece of shit πŸ™„) so next bad cervix so jumped on cervical cancer THREE bloody weeks after a visit 2 gyno when your put in some mental chair, legs up n a nice camera 2 see my beautiful cervix πŸ˜‚ this may sound scary but after childbirth and my daily pain this is bloody nothing... so full smear n biopsy taken! Anxious 3weeks in agony is no fun... all results clear! Wonderful but back 2 square one! So next step is unltasound in which I find out I have polycystic ovaries in which this would be why the copper coil was a total fail! They did also mention about pelvic congestion but that's another issue! Finally after 16months of bleeding I begged 2 get tablets 2 stop it n sent back 2 gyno after going down all avenues still no answers. At this point like everyone I research and finally find endometriosis support groups of thousands of poor woman going through all this same shit as me 😲 I get chatting and these woman are warriors!! so I seen a new gyno at a private hospital through nhs as after research realised I need a proper endometriosis specialist due 2 not many knowing how to deal with the condition let alone where 2 look 2 find it! I got 2 see an absolutely amazing woman who was so happy a woman has comes through the door with info and knew research on the topic and that I'm very lucky 2 have a doc who has tried everything before (which is all the gyno would do before considering surgery) finally someone who understands and can give me the answers I've been looking for! I had my pre op and finally on Saturday I had my long awaited laparocopy and long and behold she's found my endometriosis and feel happy it's stage 1 so it hadn't spread 2 ANY part of my organs!! Recovery is hard but worth every moment. I'm extremely lucky 2 have my 2boys and not be worried about fertility if anything needed or ever needs 2 be taken but other ladies are not so lucky and with an average of 7years 2 get diagnosed plus 1 in 10 woman suffer from this on a daily basis its amazing its not spoken about more! Even though mine at this moment is a positive story remember that endometriosis can/will always grow back and something you live with for the rest of your life (unless they find a cure)

Thank you for anyone who has taken the time out 2 read my story and remember ladies there is no such thing as a really bad period!! Don't give up and keep fighting my fellow endometriosis warriors πŸ’›πŸ’›

I would just like 2 add is this doesn't just affect the woman... my partner has been my rock and after reading my story I'm sure you can understand you can't possibly have a 'normal relationship with this condition and 2 kids! Support has 2 be the biggest factor and without it your journey will be even harder so just explain the condition and make them understand how you feel or they have no clue!

On a final note I've also been extremely lucky that my best friend also has endometriosis so I have someone who does actually understands so if I wanted 2 ask a gross question or summit I felt stupid about I would always go 2 her but for anyone who doesn't have that person the endometriosis support group online is amazing for anyone a little scared 😘

Please share 2 all your friends and family, even if this post helps one lady get some answers it's more awareness πŸ’›πŸ’›

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edodd24
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introuble profile image
introuble

Hi, nice story

Thanks for sharing

Doggiedogmom1973 profile image
Doggiedogmom1973

hi edodd24,

how many years did it take to finally be told you had endometroisis?

You need to read this: "the doctor will see you now", Author Tamer Seckin M.D. He's one of the best endometriosis doctors in the world. his 30 years knowledge is amazing and will help you and everyone to end this ruthless years of suffering with this horrible disease.

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