Hi ladies, so I had my lap last week and I don’t have endometriosis however I do have endosalpingiosis (confirmed through pathology from biopsy’s). However there’s so little information on it and I don’t have a follow up for 3 months. All I can understand is it’s quite rare. Does anyone here have this? Or have any more info on it?
Thank you 💗
So endosalpingiosis is the presence of cystic glands outside the fallopian tubes which are lined with fallopian tube epithelium (or lining) cells. These cells within the fallopian tube cells produce tubular fluid, it contains nutrients for sperm, eggs and fertilised eggs, and like the endometrium grow during certain parts of your cycle, will release fluid, then shrink a bit, and then do the same the next month. The growth of these cells is dependent on oestrogen and progesterone, which regulate the cell size and the amount of fluid they produce. So the growth of these cells outside of the fallopian tubes cause symptoms similar to endometriosis but instead of endometrium cells, it’s fallopian tube cells that are growing out of place.
Honestly, the condition is rareish and it’s also not very well studied as the only way to diagnose it is surgical biopsy. Hence, because it’s only diagnosed this way we don’t know how many women have it, it could be that half of people who have it are asymptomatic, or if everyone who has it is in a great deal of pain and they all report it. There are some papers however to suggest that It appears that in approximately one-third of cases, patient have coexisting endosalpingiosis and endometriosis – so it may be way more common than we think!
Currently, it’s not always treated, its generally not considered an exceptionally severe pathology by itself, however, the symptoms caused by it may need addressing. The treatment plan is similar to endometriosis, cases that cause pain can be treated with surgery by a specialist, hormone therapies can also be used such as continuous progesterone which keeps you in the luteal phase of your cycle, preventing the high levels of oestrogen found in ovulation as oestrogen can aggravate the condition.
I know three months is a long time to wait for a follow up, if you are in a lot of pain etc I would push for one sooner, or try and speak to them about pain management / medications that can be used before you have a deeper chat about what your long term treatment options are.
Thank you so much for your reply it’s very informative and helpful.
I had a coil fitted during my lap which is hopefully going to help.
When the consultant called me yesterday he said treatment and options will be discussed at appointment and I was given pain relief to take home post lap.
I suffer bad with my periods however am a lot worse during ovulation so maybe this explains it. I have pretty much every symptom of endometriosis so I’m guessing this is what’s causing the pain instead. I also have a bulky uterus which I’m not sure if it’s connected to this or not.
Xx
I hope the pain relief is helping, the main deviator between endometriosis and endosalpingiosis does seem to be the latter has more pain during the middle of the cycle. Though the histology is pretty conclusive (have a google for some histology pictures of it because they are oddly beautiful given it can cause such pain, but I’m a scientist so I’m weirdly curious about that kind of stuff.)
Good luck with treatment, hope you have a speedy recovery <3
Thank you so much, will definitely have a look. You’ve been super helpful xx
A newbie just hoping for some pain relief advice.
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