Fuming!

[princessk09]

The doctors love wasting my time so much. Sorry if this turns into a rant but I’m fuming.

I always have to see junior doctors who don’t know much haha and I have to repeat my story all the time. Anyways he dismissed the endo specialists report and opinions of him suspecting I have pelvic endometriosis. The specialist at Spire felt tenderness in my Adnexal area (ovaries and uterus) and suprapubic region.

However the junior doctor just told me this is all normal and everyone feels severe tenderness and pain when being pressed on their stomach 🙄 (my mum doesn’t).

I asked the doctor today if scans can change over a year and he said yeah but I still don’t think you have PCOS as I don’t have all the symptoms but my testosterone is still high after a year. I still have no info about what is causing it and how to fix it.

The ultrasound was clear last year but what if it’s changed now and the doctors are dismissing it. I feel like it’s all in my head and I’m not being taken seriously at all. Only person who did was the specialist at spire.

Does anyone have endometriosis but only has a handful of symptoms. Like I have regular periods now but they are so painful and heavy. Also can endo be missed on an ultrasound?

[tinkerbell971]

Endo doesn’t really show on ultrasounds unless it’s deep infiltrating endo. Why don’t you ask to be seen by the consultant and not junior doctors? Also if you’re in a lot of pain and they aren’t doing anything would you consider going for the lap privately? Or if you can’t afford it could the consultant from spire not refer you to an NHS consultant?

[princessk09 in reply to tinkerbell971]

The spire consultant has referred me to the nhs which I’m going to an appointment next week. I’m worried the gynae is gonna be shit though like the rest of the ones I’ve seen on the nhs.

I really wish I could have a lap privately but it’s too expensive. Even my normal Gp is useless most of the time and agreed with the junior doctor today.

The spire doctor thinks I have pelvic endometriosis

[tinkerbell971 in reply to princessk09]

Try not to worry about the appointment next week and keep your fingers crossed. Hopefully the nhs gynae will understand what the spire one is saying and do something about it, just don’t go in there thinking of negatives and if the nhs one refuses then ask why and fight against it x

[princessk09 in reply to tinkerbell971]

Yeah, I don’t have irregular periods anymore so I think that’s why the doctors are just messing me around and think I don’t have endo x

[tinkerbell971 in reply to princessk09]

It’s not just about periods though. I had random bleeding when I first seen my gynae and he advised back to back pills and since I’ve done that my periods have been fine but he still wanted to do the lap because of pain etc. I think we know if somethings wrong with our bodies it’s just a shame when doctors don’t listen x

[SufferingSilently9 in reply to tinkerbell971]

I got referred by my spire gynae to nhs and it ended up being him who is now my designated gynae but as an nhs gynae cos he'd referred me to himself 😂 I had been pushing my gp for years and got dismissed but once referred through Spire they decided to investigate further and even decided to rush my lap becaus3 I told him my symptoms had been ignored for so long and had gotten worse.

[princessk09 in reply to SufferingSilently9]

Unfortunately the gynae at spire doesn’t work in the nhs anymore 🙄 but he’s referred me to the hospital he used to work at.

If I was rich, I’d definitely carry on seeing the spire gynae as he was amazing and has so much knowledge

At the hospital in a week I’m gonna try and see if the new gynae can rush my waiting time for a lap as all the pain is affecting my sports career and the season starts soon so I don’t want to miss it too much

[SufferingSilently9 in reply to princessk09]

Yeah I wish I could afford to do spire all the time too.

My lap got rushed so I'm sure yours can be too especially if you put forward how much it affects your livelihood.

I saw my spire doctor 20th December, saw him under nhs 3rd January and my lap is in less than 2 weeks so it can be helpful to get a good referal.

Hope your appointment goes well xx

[princessk09 in reply to SufferingSilently9]

Thank you, hope your lap goes well too xx

[Natalie221]

This happened to me back in 2014 no one took me seriously and I was told it was just bad periods I had an ultrasound and it was clear my periods were regular but were very heavy I was suffering with pelvic pain pain in my legs to the point I couldn’t walk I went to the hospital and they said they were writing to my doctor to refer me for laparoscopy because they were sure I had endometriosis I had laparoscopy which showed I had an endometriosis lesion in my pouch of Douglas. Keep pushing like I did and they will listen eventually all in all it took over a year for me to get sorted. Hope everything works out xx

[cmbxm]

If it gets any worse, move GP surgeries, you can find a list of local surgeries on the nhs website and see if the doctors are junior or not! A GP that acknowledges the issue is half the battle x

[princessk09 in reply to cmbxm]

Yeah, my doctors seem to be always going against an endometriosis specialists opinion which honestly baffles me haha.

[Hidden]

GPs can’t really do much as you’re about to be under a gynaecologist- all they can do is try to manage your pain. They have limited knowledge on women’s health issues. Any concerns I have I tend to refer to my gynaes ( I’m under a fertility doctor and general gynaecologist) all saying that my lady drs at my practice have been very supportive- you’re probably better talking to gynae/ lady GP. I changed my gp as he was so dismissive- my new GP she’s great.

I think the referral coming from the endo specialist will hold huge whack- I had a referral from my fertility doctor to a gynaecologist ( long story) and I was taken much more seriously. The fact they know him will go in your favour and will take note of what he has suggested. I’m sure they will refer you for a laparoscopy as there is no other way to properly diagnose endometriosis.

Sorry you’ve had some disappointing appointments with specialists/ GPs - been there till I met my fertility doctor.

Good luck for your appointment xoxo