Undiagnosed endometriosis (19 years of da... - Endometriosis UK

Endometriosis UK

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Undiagnosed endometriosis (19 years of damage) , adenomyosis, recess negative blood, possibly multi-autoimmune diseases, Raynaud's, gout, ++

Artymiss profile image
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I have all the conditions above-mentioned and quite a few more. Wondering what else this may lead to feeling very apprehensive towards a cancer diagnosis I pretty much got everything bloody else. For 20 years I was made to feel like a hypochondriac and told that I was just menstruating and to probably go home. It makes me sick to think what 20 years of damage might have done. My bowels are fused my cervix and I have a retroflexed vagina. This is severely affected my confidence and my sex life to the point where I no longer have one. It's also taking my chance of ever extending my family in a future relationship. It's now interfering with my life to the point where I can't work around that time of the month if I do I end up in hospital for the night. I don't drink much anymore because this also affects the inflammation I can't even enjoy food much anymore because there's less room in my bowels and it causes severe stomach pain.

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Artymiss
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ber_dock profile image
ber_dock

My heart goes out to you...I know it doesn’t solve anything but you’re not alone.20 years is a long time being fobbed off.Its like you’ve been left on the shelf to rot but the most cruel aspect is how they made you suffer to convince you it was normal.It took me 8 years to get diagnosed..no one would listen because I was so young.I then developed Adenomyosis like yourself along with M.E & Fibro and other immune relative issues,Endometriomas and cysts hemoraghing etc.My first gynaecologist actually made my life hell,he said it’s normal and that I need to deal with it,he didn’t care that I screamed until I couldn’t breathe. it wasn’t until I collapsed in a different town and landed in a Endo Clinic that I found out how bad it was.He said I was one of the worst cases that he’d seen,being so young.He cancelled the whole surgery day to do my surgery- he tried to persevre my tubes.Unfortunately they both got blocked again due to numerous infections so I cannot have kids either bcus I had them removed.So i relate so much..I really do hope you find help?I hope you’re finally under a specialist?I dread to think how much excruciating pain and suffering you’ve been through and what possible damage is happening inside you.Its so wrong to be treated so inhumanly like you have.What is happening to you is very real,it’s sickening to know this type of treatment happens but I hope you get answers and soon!Good luck on your journey

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