Zoladex: So I was on Zoladex in August 201... - Endometriosis UK

Endometriosis UK

71,635 members52,509 posts

Zoladex

Xlaurenx profile image
3 Replies

So I was on Zoladex in August 2017 to March 2018, I had the injection every 3 months. My life was normal and I had no periods!! Ifor the first 3 months I had the hot flushes and was struggling so was given HRT on the second injection. The constant pain came back straight away, the specialist said I could only have the injections for 6 months Max, so he sent me to a different specialist.

In June 2018 I went to see the new specialist who said I can have Zoladex for another 2 years max, In July I was given my first injection, I again I have this every 3 months. I was on my period and it soon stopped the day after. I thought yes this is it back to normal for 2 years, no more going on holiday and not being able to swim due to being so heavy. NOPE! I was back on my period a week after, the pain is manageable but in the evening its very strong, I first started light but was on my period for 2 weeks, I stopped for a week with slight back pain in the evening. Then I started again with full on pains for 2 weeks again. I stopped for a week and you guessed It started again this time for 3 weeks, it was very heavy for that time.. I had my second injection on the 10th October, I stopped 5 days after that. On Friday I started with Hip pain and dull back ache, today the pain is all over and I have come on again! I am really heavy today and had to change my pad more than normal.

So after my rant my question is has anyone else had this trouble on zoladex? My GP thinks it may because I am also on HRT from the start.I am worried with the amount of time I am on my period it feels like I am for 3 weeks at a time with a 1 week break, Is this normal for Zoladex?

Also I should add My specialist thinks I might also have Pelvic Congestion Syndrome, so I had a Pelvic MRI scan with the dye on Friday, don't have faith in the specialist giving me fast response as they have taken the mick in sending out letters..

Written by
Xlaurenx profile image
Xlaurenx
To view profiles and participate in discussions please or .
Read more about...
3 Replies
ramjer3 profile image
ramjer3

reading your post has confirmed all my fears . My consultant wants me to try this medication . To be honest I just feel like a bloody lab rat

Xlaurenx profile image
Xlaurenx in reply to ramjer3

It’s worth a try because it did work last year, I was back to me again! I loved those 6 months and begged to have it again. I’m just not sure why this time I’m bleeding so much on it?

I know that is what it’s like try this, try that. Why can’t they just get rid. Good luck if you do try it.

Lexie26 profile image
Lexie26

could be the HRT. apparently it's best not to have HRT as it basically offsets all the good the Zoladex is doing. have you discussed stopping HRT for a while?

You may also like...

Zoladex

suddenly started bleeding heavy again. Had a scan to find I had more fibroids and one had pushed...

Zoladex

on the injections I feel fab.. Has anyone had experience of feeling like this after stopping the...

Zoladex

thoughts down. I was due to get my first zoladex injection today however after many hours of...

Zoladex

31. I had my first zoladex injection yesterday just before lunch, gyne said if this stops period...

Zoladex

Hi all Having my 1st Zoladex injection this Thursday (Goserelin 3.6mg), and starting to get really...