Specialist clinic -

[Aaliyah16]

Hi Ladies,

Has anyone been referred to the specialist Endometriosis clinic at [removed]?

[aw2901]

Yes and they have been really good. The clinics are really thorough, they have a specialist endo nurse who is available to speak to anytime and they run an evening support group there. I’ve been seen by two other hospitals and [removed] are a million times better.

[Aaliyah16 in reply to aw2901]

Thanks. Unfortunately I haven’t had the same experience. I am not diagnosed but my symptoms are all those listed as endo symptoms. The consultants do not want me to have a lap to diagnose or rule out endo. I keep being told that my ultrasounds have been normal and so they doubt I have it, but I read in so many sources that it doesn’t show on an ultrasound??? I am in pain with or without periods and all the consultants are dismissive of any endo possibilities but they can’t explain to me why I am having period like pains all month??

[LovingVibes in reply to aw2901]

Hey, I’ve been referred to at the [removed]. Have u been there before? Do u think it’s better to transfer to [removed]?

I’m in such a state cos they did an MRI and not telling me anything yet for weeks now!

[MrsLane]

Is it the [removed] centre you've been referred to or the gynaecological ward?

I was referred to the general ward first after being admitted from a&e and found the service was really poor.

Despite already being diagnosed and having surgery previously, the doctor doing the rounds kept asking if i was really sure i had endometriosis as it sounds like i "just have normal PMT".

The attitude of the staff i encountered was pretty shocking so I can imagine how dismissed you've felt!

Even with a diagnosis, previous surgery and a 5cm endometrioma cyst on my scans i was still made to justify myself.

I met with a specialist endometriosis nurse at the [removed] after and she was very understanding and knowledgeable so maybe push to get another opinion?

I also had no endometriosis on my ultrasound 5 years ago but was diagnosed through surgery.

[Aaliyah16 in reply to MrsLane]

Thanks! I may consider being referred to another BSGE clinic. Glad I’m not the only one to find them dismissive! What were your symptoms and are you on effective treatment now?

[MrsLane in reply to Aaliyah16]

Yeah its worth a try being referred somewhere else to get listened to!

I had severe pain during my periods, passing out, vomiting etc but no constant pain back then.

Surgery removed most of the endo and I had a mirena coil fitted which personally really worked for me.

I had no periods and virtually no pain for around 4 years!

As expected though it has now returned and I have a big cyst on my ovary so currently on hormone injections awaiting surgery no.2.

Hope you find a diagnosis soon!

[endo_supportmanager Partner Endometriosis UK]

Hi everyone

Just a gentle reminder that our code of conduct states that forum users should not name medical professionals or medical clinics.

Here's what's written in the code of conduct:

"We know that it is important to feel confident that you are getting the right treatment from

excellent medical practitioners and hospital teams. Please be aware that we do not allow

discussion or recommendation of medical practitioners or hospitals on the public forum.

Should you wish to request this type of information, you can ask forum members to

private message you but not comment. We will delete posts and comments that name

individual practitioners or hospitals, and message the original poster inviting them to

repost requesting the information via private message. It’s important to remember, that

your experience may not be the same as others and that the views of those on the forum

are in no way shared by Endometriosis UK."

Please do continue to discuss this in private messages, or to talk about your experiences in general terms without naming services.

I won't delete any posts but I will edit posts and delete specific names of clinics.

Thanks for your understanding with this.

Best wishes

Jack

Endometriosis UK